I Am Moana!

Jeez, it's been another long time since I've posted one of these. Once again, I'm sorry! Updates: My job is going well. I also had my surgery to coil and stent my aneurysm last September, and I'm going for a follow-up angiogram in about a month to make sure everything is healing properly.

As you can see, the title of the blog posts alludes to the name of a song in the Disney movie Moana and, of course, the movie Moana itself. The other day, I had a really interesting-- and frustrating-- thread about this movie. It started when I posted this:

One of my favorite things about "Moana" is that it's a buddies movie with a guy and a girl. Yes, believe it or not, a guy and a girl over the age of 12 can hang out and even be alone on a boat for several weeks without falling in love (despite the jokes that [friend's name here] and I make about it). All too many movies that have a woman as a main character either portray her as someone who is an "accessory" to the man or, if she's the absolute main character, she has to fall in love with a man because, vagina. It's almost always obligatory when a woman is an absolute main character. Maui and Moana become best friends. They hug, they high five (yeah yeah, that wasn't around thousands of years ago, but it's Disney; what do you want?), they act silly in a way that's non-flirtatious.And I don't know anything about ancient Polynesian cultures, but I have heard that aboriginal cultures in general were often more egalitarian than the Christian-dominated cultures that followed in the centuries to come. So why not?

One guy, I'll just call him "G", wrote this in response:

G: So, actually you say that desire and bodily needs are rooted in christianity?I highly doubt that...
Me: No that is absolutely not what I said.
G: You've praised a movie for the lack of lust in it and then wrote, abo [sic] cultures like Moana's were more egalitarian than Christian culture. That is what you said.But let's flip the story, why is it a bad thing that men and women have basic needs and those needs are being addressed? The Heroine also eats and goes to the toilet sometimes.
Well, for the love part, I tend to agree with you, she doesn't have to fall in love to fulfill her needs, but I guess I'd prefer this romantic way rather than just showing her random copulating with strangers.Well, for the love part, I tend to agree with you, she doesn't have to fall in love to fulfill her needs, but I guess I'd prefer this romantic way rather than just showing her random copulating with strangers.
Me: No you are missing the point. Movies with men as main characters have them sometimes falling in love, sometimes not. If the main character is a woman, she has to fall in love. In other words, it’s woman [sic] being defined in relation to men.

The egalitarian stuff I was talking about was in reference to that they went on an adventure together that a woman wouldn’t typically go on, at least not in Christian dominated cultures over the past several centuries
The egalitarian stuff I was talking about was in reference to that they went on an adventure together that a woman wouldn’t typically go on, at least not in Christian dominated cultures over the past several centuries

What is frustrating is how often I have had this type of conversation with people and how often they misunderstand it. It's been going on since childhood. I thought my opening post was clear, but as you can see I had to clarify it. And the very idea that a movie not involving a man needing to get laid or a woman needing a man to love her (sadly, the formula for many romance movies is just that) is a good thing seems to be alien to so many people. I might as well be saying, "Wow, finally, a movie where somebody doesn't breath oxygen!" 

There are a lot of things that I appreciate about Moana, and the fact that they didn't chuck in a love story is one of them, for the reasons I stated above. I am sure the only reasons that the writers didn't put in a love story are: 

a) because it was irrelevant to the plot and 

b) because in today's world of Internet predators the idea of a 16-year-old falling in love with an ageless man (who is presented as if he is in his mid-twenties, perhaps) would just be inappropriate (although maybe there was a little bit of a feminist consciousness when the story was written). 

But let's look at it for a moment as if this were a real scenario. Why isn't Moana falling in love with Maui? I mean, they have been alone together on that boat for weeks! Surely some primal instinct would take over, right? Why didn't she fall in love? I don't know. Maybe she's gay. Maybe she's asexual. Maybe her sexuality hasn't awoken yet.

Or maybe Moana IS heterosexual and, gasp, there was just no sexual tension between her and Maui, and why is really not important.Yes, believe it or not, this is possible. I'm heterosexual but I have a lot of friends who are guys and the sexual tension between us is zero. We might high-five or hug (depending on the person and my relationship with them) but that's as far as it will go or ever will go, even if in the snowball's chance in hell that we end up stranded on a boat together for several weeks. This may be because I'm demisexual (Google it) but I think there are a lot of heterosexual opposite-sex friends who don't encounter sexual tension when they spend time together. I remember being frustrated as a kid when my mom would say that in every interaction between heterosexual people of the opposite sex, there is always going to be some level of sexual tension. No. That's not true. For some people, yes, it absolutely is true. Some guys see an attractive woman and their mind doesn't even register it. Others immediately think, "Oh she's attractive." Others still within a nanosecond of seeing an attractive woman think, "I want to fuck her." And this is just the cisgender man side. Cisgender women? Same deal. What about gay cisgender men and gay cisgender women? Probably even more complicated when we are talking about transgender and gender non-binary people.

I guess what frustrates me the most is when I praise Moana and other movies for having guys and girls being close, non-sexual friends, other people are hearing me say that sex is bad. Or they think I have a personal sexual problem. But what I really am praising is the visibility of other types of relationships, that sex isn't the be-all-and-end-all of human interaction. I'm praising the visibility of someone who might be gay. Or asexual. Or not sure yet. Or just praising the idea that heterosexual people can spend time alone without wanting to do each other. Is it really that complicated? 

While I do think the whole idea of women being defined in relation to men is still a pervasive problem in film, I also think it is happening less and less. Moana is one film that is finally breaking that mold. Moreover, I think in terms of film characters she is a good role model for young girls. She is strong and determined and independent. And as for Maui? Yeah, he teaches Moana wayfinding, but he also learns a few things from Moana. How often do you see men learning from women in movies?

November 13, 1998

Names and places are changed to protect the privacy of those involved. 

I remember a lot of dates, some of them silly-- like the date I saw a particular movie for the first time-- and some of them significant-- like the date that a pet died. I also remember a lot of dates in which traumatic events happened, and I don't mean the types of traumatic events that everybody goes through, such as the death of a loved one. I'm talking about the type of trauma that seems to be unique to people with Asperger's Syndrome: social trauma.

Friday, November 13th, 1998, was such a date. And no, I'm not attributing significance to the fact that this particular event in question happened on Friday the 13th. I just happened to think about it this year because 2015's calendar corresponds to 1998's calendar. I remember this day so clearly, perhaps a little too clearly.

I recall that Dad drove me to school that morning. It was one of those days where I had do some presentation or other that included props that were too large and cumbersome to take on the school bus. As Dad drove up Route 611 toward Doylestown, he and I both looked out the window at the drive-in theater, one of the last in the country. It was about to be torn down to make way for a new strip mall.

"Tonight's the last night that it's going to be open," said Dad. "I think they're showing Grease."

"Can we go tonight?" I asked. I had no interest in Grease, but I had never been to a drive-in theater.

"Maybe," said Dad.

But it didn't happen. I couldn't even think about going to see a movie that night. I came home from school that day, checking the mailbox for the ten-millionth time to see if my application for the post-high-school-yearlong Israel trip, affiliated with Camp Negev, had arrived. Finally, I opened the mailbox to see a thick envelope. I knew that everybody else in my age group at camp had already received an application, but when I hadn't, I called the central office in New York City. I was already suspicious that somebody in authority had deliberately not sent me an application, but my parents also reminded me that the organization affiliated with Camp Negev was poorly managed: it could have been a simple oversight, and nothing more.

But a few minutes later I learned that this was not the case: I stepped inside the house and opened the envelope. On top of the application was a cover letter. (I actually used to have it memorized, and here I have reconstructed it to the best of my ability):

November 10^th, 1998

Dear Julie:

Thank you for your interest in the [name of Israel program] program. We know that you have been very involved in the movement and have spent many rewarding summers at Negev. You are welcome to apply, but [name of Israel program] is an intense and demanding program, and we as an executive committee felt it necessary to include a letter explaining our reservations.

[Name of Israel program] involves working in intense group situations in unfamiliar settings, and we are worried that such situations, particularly those involving group dynamics, could cause difficulty for you.

Best Wishes,

[names of executive staff]

I shouted, "What the fuck does that even mean?" even though there was nobody around to hear me. "How could they do this to me? How could they fucking do this to me?" My dog came into the room, and I crouched on the floor, crying. My dog, a yellow Lab, always showed great empathy. I pulled her to me, and she burrowed her head into my belly, which is something she often did when showing affection, particularly if I was upset. I held her and cried on her, but it wasn't enough. I wanted my friend, mentor, first crush, and camp counselor from my first year at camp (1995), Jonas, to be there and help me, to get me some answers, to do something. But he wasn't. He was in Israel with his girlfriend, supervising the current yearlong program.

It seemed that this nightmare would never end. I had two wonderful years at Camp Negev in 1995 and 1996. Then I went on the summer Israel trip in 1997 where I had an uncontrollable crush on a counselor, Chuck. It significantly interfered with my summer experience and, deeply embarrassed by it, I vowed it would never happen again. I recall that I tried reminding myself that experiencing a crush is merely a manifestation of the instinct to reproduce, and the drug-like state that it puts you in is merely that-- drug-like. I said to myself, "Remember, all you're experiencing is a chemical reaction."

A very powerful chemical reaction.

Summer 1998, back at Camp Negev for the CIT program, it happened again. I developed a crush on Omri, one of the Israeli counselors. Prepared for the possibility of falling for someone else, as much as I did not want it to happen, I set up very strict protocol, with assiduous controls  to prevent it from getting out of hand. But all it did was delay Omri figuring it out, getting freaked out about it, and my inevitable blowup toward the end of the summer. Overall, I had a fun summer (I tend to try to look on the positive side of things), but between the crush on Omri and the fact that I wasn't allowed to work with kids until second session, there was a lot of stress. The overall message that I received from the counselors was, "You made your bed, now sleep in it. Learn to deal with your problems." When I told this story to a therapist who I saw during my senior year of high school, he said, "How did they expect you to work under that kind of pressure?" A variety of therapists I saw over the years have expressed similar sentiments.

How in the world could I get anybody to understand that I was trying to control myself, that the outbursts that they saw were the end result of me denying my own emotions so that I would look "mature"? And what about the fact that I wasn't allowed to be irreverent at all, as it was "inappropriate", but other people at camp got away with appalling, egregious forms of inappropriateness, went on the yearlong Israel program and got hired as counselors year after year?

I heard the garage door open. Mom was home. I didn't know how I was going to tell her this. I had kept my mouth shut over the past few years about problems whenever possible because it always came back to her yelling at me for my acting like and dressing like I had a penis (sorry, even as a kid I felt that that's really what imploring me to "act/dress like a girl" came down to).

I overheard Mom talking with some teacher friend. I knew I wouldn't be able to handle myself in front of them, so before they could get through the door I went upstairs to check my email and see if anybody was on AOL Instant Messenger. No emails from Jonas, no camp friends or my friend from Philadelphia, Jenna, on AIM. But an hour passed, and Mom's friend was still there. There they were, downstairs, shooting the shit because they were normal people who took their social lives for granted. Just overhearing them made me want to put my fist through something.

Finally, when I calmed down somewhat, I went downstairs. I really shouldn't have: in my state of mind, trying to once again contain my rage, I had to go through the whole, "This is my daughter, Julie, Julie this is my friend [name here]"- "Hi, Julie, nice to meet you. Where do you go to school?" - etc. social niceties ritual. Reluctantly, I sat down and watched Mom and Mrs. Normal-Middle-Aged-Teacher eat cookies and drink tea and do all these Normal things as I tried to squash the surge of adrenaline that was inexorably building in me and hijacking my amygdala. Finally, Mom asked, "How was school?" It was fine. "Did your application come today?" I nodded. "Mom asked, 'Is everything OK?'" I leveled Mom a gaze that I hoped communicated, "Get that fucking woman out of here now." About fifteen minutes later, the woman left.

As soon as the woman was gone, Mom took one look at me and asked, "What's wrong?"

"This!" I exploded, shoving the cover letter in Mom's face.

Mom's face fell after she read the letter. She reached out to hug me, but I backed away. I was never big on hugs, and to me it always seemed like a pretentious way of addressing an issue. Years later, when I learned about Asperger's Syndrome, I found out that this is a very typical Aspie attitude. "No!" I snapped. "I don't want a hug! It's not going to help anything!"

"But it's good for you…" Mom pleaded.

I shook my head again. "Don't take it personally," I muttered. "It's just… the way I am." But how the hell could I have even explained that, not yet having the vocabulary for what I was?

Mom then suggested I call the central office and get an explanation. I don't know how I did it, but I managed to flip a switch in my head and calm down enough to make the phone call. I told the woman who answered who I was, and I asked her to do something I knew she wasn't allowed to do (but I hoped she would do anyway): I asked her to read me my CIT evaluation.

"Let's see…" said the woman. "It seems that you talked about… Satan… in front of the kids."

I was floored, but did my best to keep my tone level: "What? I had my dumb jokes with the other CITs, but I would never have made such jokes in front of the kids."

At least not on purpose. It was very possible I had made a Satan joke while not knowing a kid was standing behind me. And let's not forget that Omri had a similar sense of humor to me, and I guess because of his penis it was okay for him to make jokes about Satan, which he had apparently been doing at camp since the previous summer. Today I still have a photo of him dressed up as Satan with a "666" taped across his chest.

"What else?" I asked.

"Let's see… it says, 'Julie stomped out of the dining room when everyone else left and she thought they purposely left her behind. She thinks that people are out to get her.'"

"What? That did not happen!" I honestly had no idea what she was talking about. I racked my brain, trying to think of what the statement was referring to. But nothing came to mind. I'm sure my parents would have said, "Maybe you did it and just don't realize it." That was one of their typical responses to accusations leveled against me. It was so frustrating.

"Oh, maybe it was from another year," the woman said.

From another year? They wrote something that I had done during a previous year as if it had happened this year? I might have done it in 1995 when I first got there and truly was paranoid-- but years of having been bullied at school conditioned me that way. To toss in an incident from years past as if it had happened just months ago seemed like a sneaky, underhanded move to me.

"Could not be dealt with on a level that was appropriate for the CIT program."

Yes, another blanket statement. No elaboration.

"Did they say anything good?" I asked.

"Julie painted rocks for each of the bunks to have outside their doors."

"That's it?" I asked.

"Yeah," said the woman.

"What about my evaluation for the summer Israel trip?" I asked.

She searched but couldn't find it. Maybe it was for the best. Even today I'm not sure I want to know what was on it. I still cringe at some of the out-in-left-field stuff I said and did that summer.

I got off the phone and broke down again. I told Mom an abridged version of what the woman said. I didn't mention the Satan jokes-- I knew that she would bring up my lack of a penis for the joke's inappropriateness-- and I sure as hell wasn't going to tell her about the "stomping out of the dining room", which I didn't even remember doing, at least not that summer. I would have just gotten the standard lecture about how I can't blow up like that. So I simply told her that the woman told me that I constantly said and did inappropriate things in front of the kids.

I told Mom about the time that I came to one of the cabins during a movie night to find a little girl in there, crying, because the movie being shown (Mission Impossible) was rated PG-13 and she wasn't allowed to see PG-13 movies. I spent the evening with her playing cards so that she'd have something to do. That didn't make my evaluation. Nor did, "The younger kids really liked her and often followed her around." And what about the number of kids who felt that they could come to me if something was wrong, because they felt I would understand? Nope. Not newsworthy.

And then there was the time I was sitting in on a meeting with the staff of the age group I eventually was assigned to second session. Despite the fact that there were kids in the next room who could probably hear what we were saying, the staff were trash-talking an eleven-year-old kid with four-doses-of-Ritalin-per-day ADHD. They said that he was a hopeless case and that they didn't like him. I stood up for the kid and told the counselors that it wasn't right to make condemnations like that, especially about someone half their age. I explained that the kid's brain was hardwired differently and that he couldn't help a lot of what he did. The counselors' reaction? They laughed it off. Needless to say, standing up for the underdog didn't make it to my evaluation.

What about the counselors' evaluations? Did "Leaves kids alone in cabins" turn up on the evaluations of the many rogue counselors who did just that? Actually, leaving kids alone in cabins-- while going to the staff lounge to smoke pot-- was common practice. Nobody was ever called out for that. Nor was Omri called out for the time that he tossed a butcher knife into the sink when I was standing over it. Despite the fact that I had had a crush on him (he was very nice and helpful to me in the beginning of the summer when I wasn't allowed to work with kids), I had enough presence of mind to get in his face and firmly tell him never to do something like that again, that he could have hurt me. He had shrugged it off, saying he wouldn't have hit me, that his aim was excellent. And I'm sure it was. He was fresh out of the Israeli army. But it apparently didn't cross his mind that I could have suddenly moved into the path of the knife.

When I talked about these injustices with Dad later that evening, he put it succinctly: "Julie's getting crapped on for her little infringements while everyone else is getting away with murder."

At Mom's urging, I wrote a letter to the executive committee, telling them my side of the story. I finished a draft of a six-page-letter just before dinner. After dinner, I held up a piece of blank paper and said to my parents, "This is my reputation. Watch what happens: Telling a stupid joke that nobody gets." I ripped off a corner of the paper. "Accidentally saying a bad word in front of a kid who I don't even know is standing behind me." Off came another corner. "Having a bad day and not being able to keep a straight face." Rip. I silently added to myself, "Having crushes that I can't control." Silent rip. Aloud, I continued, "Being friends with the wrong people." Rip. And by the time I was done, there was no paper left.

And yes, someone on staff had once expressed concern about who I was friends with-- that the kids in my age group that I had the best relationships with were deemed "not mature enough". My two best friends had issues of their own and were a little unusual, which is probably why we understood each other. In retrospect, one girl that I was good friends with probably had Asperger's Syndrome-- she talked about horses almost constantly and missed tons of social cues that even I caught (and meanwhile she caught cues that I missed-- go figure). The other one-- a guy who had taken on a new name because he didn't like the one his parents had given him-- was bipolar, slightly effeminate, and got incredibly upset if people called him by his birth name and if somebody tried to take a picture of him (strangely enough, none of these quirks was seen as something to prevent him from working with kids). 

That was seventeen years ago, and times have changed drastically. I often think that the 1990s were to Aspies as what the 1950s were to gay people: the final darkness before dawn. We are now living in an more enlightened era, one in which teachers, counselors, etc. are being taught to understand different issues that kids may have.

This date that I remember so vividly is a perfect illustration of what kids with Asperger's often go through, especially if they grew up before Asperger's was even a known condition. It is practically textbook that neurotypical people can get away with outlandish behavior while people with Asperger's get called out for minor infractions. My shrink has told me she thinks it's because others notice that something is "off" about Aspies and they are thus more likely to notice such infractions, and be less likely to notice the good, altruistic things that they do.

The organization that my camp is a part of was run by people under twenty-five, as it's considered a "youth movement". People aged 21, 22, 23 were making huge decisions about me. Somebody must have eventually realized that people that age are too young and inexperienced to run a movement themselves, so today retired teachers are in charge of the youth leaders, as mentors of sorts. And today the camp is well-supervised, and drugs aren't tolerated on staff. If I were born in 1998 and gone to the CIT program in 2015 or 2016, had they thought I wasn't ready for kids they would have given me something constructive to do. I went back to Negev for an alumni day in 2011. I told one of the counselors my story and we talked about how much camp-- and the world-- has changed since the '90s. She said that there are sometimes kids who aren't ready to be CITs. But they are not shamed and shunned like I was. Instead, they are given something else constructive to do, such as helping write the blog or take photos for it, or working in the kitchen. Today, the staff wouldn't have given me the "You've made your bed, now sleep in it" attitude. Parents today of a kid receiving such treatment would be out for blood. As for the year-long Israel trip? Some accommodations would have likely been made.

Although I have since accepted my past, it's not so easy to put it behind me. I will never be 18 again and will never have the opportunity to spend a year abroad with other post-highschool kids. You only get one shot at life, and it often sucks when you realize that you were born in the wrong era, an era in which your own parents demand that you change, unwittingly implying that who you are at your core is wrong. Even today I still have dreams about this time in my life, and sometimes I just want to break something when I think about the opportunities my peers had but I didn't, all because of the way nature made me.

The Long Silence, Part 1: Writing to Survive

The Silence

The long silence began at age eleven and continued until I was twenty-eight.

For almost twenty years, my parents- Mom especially- unwittingly sent the message that everything about me was wrong. In particular, my self-identification as a tomboy and corresponding gender expression were subject to extreme scrutiny which in turn was a huge source of mental anguish for me.

As I entered adolescence,  Mom began pressuring me to mature into a "young lady". She didn't understand why I so vehemently refused to wear low-cut shirts, short shorts, and other "girly" clothes like the rest of the girls. I tried telling her that I was a tomboy-- I figured it was just another accepted way of being. I didn't realize that it was something that most people considered a stage, something that I was expected to outgrow. I should mention that when I called myself a tomboy, I didn't mean in the tongue-in-cheek way that some people use it when saying, "Oh, I like sports, I'm a tomboy" (I hated sports at that time, anyway). I meant that it was where I fell on the gender spectrum (though such terms did not yet exist, or were at least not well-known) and Mom kept telling me that I was growing up and needed to learn how to be more feminine. We often got into intense fights that left me feeling scarred.

Eventually, it seemed clear that the word "tomboy" was a dirty word-- when Mom did say "tomboy" it was laced with disdain. Time passed. I was 13 years old. Then I was 14 years old. Then 15, 16, 17... and I was not outgrowing it. I knew that I never would. But how in the world could I tell Mom this? She sounded so damn sure that she was right and that I would "change my mind someday". Even though I was sure that I was right and that Mom just didn't get it, I lived in abject terror that I would have to eventually change and conform. After all, it's a tired cliché that children grow up to say, "Mom was right. And I thought I knew everything." If that didn't happen, what would it say about me?

Even though Mom understands better now, I don't think she knew how much mental anguish this whole thing caused me. It was something I thought quite deeply about as I suffered in silence, knowing that I couldn't talk to them about my thoughts, and I don't think she or Dad were even remotely aware of it. They certainly didn't know that I wrote about it. It seems that they just saw me as a fish that was aimlessly swimming around, crashing into the side of the fishbowl.


Writing Throughout the Silence

How in the world could I handle this series of rejections from my own parents who honestly and sincerely thought they were helping me? I wrote stories. The great thing about writing is that you can say what you want without people interrupting you to question, correct, or criticize. This cathartic writing started when I was twelve. Maybe when my parents read this blog post, they'll realize how deeply I was thinking about certain issues when they dismissed my viewpoint and awareness of who I was as me not understanding the world and just being a teenager who thought she knew everything.  

Cathartic Writing #1: A String of Events

I often came up with odd ideas for cartoon characters, stories, and jokes. If I showed them to my mother, she got upset about everything that was off-color in any way. She always threw in my sex as a factor as to why such ideas were inappropriate for me to write about and draw. It became clear that I could not predict what would set her off, so I stopped showing her anything for a decade. I felt asphyxiated in so many ways that seemed related to-- to put it bluntly-- what was between my legs. 

I wrote and illustrated a story, A String of Events, in which a character goes through a similar asphyxiation. I had a cartoon series, Radioactive Squirrel, which was my answer to the children's cartoon Darkwing Duck. Just like in Darkwing Duck, Radioactive Squirrel has an adopted tomboy daughter, in this case a girl named Slick. There are some differences: Radioactive Squirrel's brother/sidekick, Flash, has an adopted son named Spunkster. Coonster, Radioactive Squirrel's pilot (a raccoon, of course), has an adopted daughter named Ghouler, who is a bit like Wednesday from The Addams Family. All these characters live together.

In this installment of my series, Slick gets the lead role in the school play. This role is in a Western that requires her to use a gun. Radioactive Squirrel does not want Slick to be in such a role in the play because he thinks it's inappropriate for girls. But she tricks him into thinking that she has been assigned another role. On opening night, a movie director sees the show and invites Slick for the lead role in his upcoming movie.  Radioactive Squirrel, already fuming that Slick has tricked him, does not want her to be in the movie because it might be too violent, have foul language, and make her play a role that is too masculine. Flash takes matters into his own hands, allowing Slick to be in the movie.  

Here is a scene from the story, with minor grammatical errors and all. The dialogue from Radioactive's mouth is eerily similar to the kinds of things my mother said-- and how she said them. You'll see Radioactive stutters from his upset in one line:

"Well, I got the leading part in the school play! They called me 'one heck of an actress'!" [said Slick]

"Really?" said Radioactive. "Who do you get to be? A princess? An angel?"

"No," said Slick. "This is a play about the old west. I am a teenage cow-girl who fights a desperado and saves the day."

"WHAT?!" said Radioactive. "My little girl has to be a-a fighter! That is not suitable for a little ten year old girl!"

"BUT DAD!" said Slick. "That part required a girl, and Ghouler gets to be the phantom who is the desperado's assistant!"

"I don't care what Ghouler has! Besides, for her, the phantom part is very inappropriate! But I won't say anything to Coonster, because Ghouler is not my daughter and you are! Besides, for them to decide a girl should get this part is very wrong!"

If you think I didn't know what I was doing, the title page of this story reads "This is dedicated to those who feel the need to blow off a little steam." 

Cathartic Writing #2: All Right Now

Okay, so I'm probably not the first kid to write about their parents' yelling into a story as a way to vent. But these feelings about gender policing did not go away, despite Mom's insistence that I would change my mind as I grew older. Not only did they not go away, but they also grew more complex. As my teen years rolled by, it became increasingly clear to me that I was never going to feel or even want to be more feminine, no matter what Mom said.  But I felt frightened, wondering if she was right. I mean, look at all the movies about tomboys. In Now and Then, for example, the tough tomboy, Roberta, becomes feminine and dresses girly as soon as she gets her first crush. Mom often told me that I was the only girl who didn't want to be feminine. My cousin, Melinda, who was well-read in gender issues, assured me that it was not uncommon, that I was not alone, and that some people are actually do more than gender-bend, and are actually transgender. Mom's response when I worked up the nerve to tell her this? "Melinda has a lot of radical beliefs."

Silence reinforced, time to write.

What if, I thought, there was a story where a tomboy didn't turn into a princess after getting her first crush? What if, instead, the person in question understood her, just like my friend Jonas (a camp counselor and my first crush) did? What if he became her friend, just like Jonas did?

The story, which takes place in the mid-'80s, features Rachel, a 12-year-old tomboy who spends time primarily with boys (something I wish I had done as I probably could have been spared a lot of the duplicitousness of teen girl friendships). Rachel's mother, who had accepted her tomboy ways over the years, suddenly starts pressuring her to change. She wants her to dress more feminine, act more feminine, and play with girls-- not other tomboys, but feminine girls. Much as I found sanctuary at my left-leaning summer camp, Rachel finds sanctuary at the house of her best friend, Jake. She develops a crush on Jake's 23-year-old brother, Bernie. In this story, the two families have known each other for her entire life, so it is a bit odd that Rachel suddenly gets this crush. But get it she does, and she finds herself spending hours talking to Bernie about the way her mother keeps pressuring her to change. She says many of the same things I said to my cousin and camp friends at the time (sounding more 16, the age I was when I wrote the first draft, than 12). Unfortunately, I can't find the original draft (though I'm sure it's on a data CD somewhere), but here is some dialogue from another draft I wrote a year later:

“You need to talk to your parents. You can’t continue having fun this summer if you have to do it behind their backs.” [said Bernie]

“I can’t talk. They won’t listen.”

           

“You don’t know that.”

            

“Tried it in the past. Never worked. Besides, I feel almost obligated to their views.”

Yes, I wrote that as a teenager. This isn't a bit of 20/20 hindsight on my part; it is what I was thinking at the time. I also said these things to my friends from camp and to my cousin. Yes, I did indeed say that I felt obligated to my mother's views. Again, when you are a kid and one of your parents sounds so damned sure, you question your own sanity even though you know that you will never change your position on a particular issue. And on top of that, many adults, such as my teachers, often commented that people get more conservative as they get older--  I didn't realize this meant fiscally conservative. I thought it meant socially conservative. That also greatly terrified me, especially when Dad would say things like, "What are you even fighting for?" as if I was a rebel without a cause.

Here's another scene, which I think aptly illustrates the discomfort I felt when my parents got on my case about gender issues. And the very last paragraph bluntly illustrates just why I thought enforced gender roles were absurd, and what it ultimately came down to:

“Rachel,” said my mother as my father turned onto Solar Drive to exit the development. “I want to see you act like a lady tonight.”

I looked back at the children on Sunset Drive. “What’s that supposed to mean?” I willed my heart not to race.

“It means you are to behave like a lady. You are to keep your voice down and you are not to play physical games with Jake.”

 “Whatever,” I said, just to keep her happy, though there were no guarantees.

“Don’t talk to your mother that way,” said my father. “She and I are looking out for you and with your best interests in mind.”

I said nothing. I concentrated on my breathing pattern. I would talk to Jake when I got to the harbor. He would laugh with me and let me get some frustration out of my system.

I didn’t get it, anyway. Why wouldn’t my parents just let me be who I was? I liked being loud with boys. I liked wrestling with Jake. I liked skateboarding. I liked being with my friends and they liked being with me.

But why? Why was it that last summer, I was allowed to wrestle and allowed to be loud? Why was it that now that I had a thick bushel of pubic hair and what I called “Japan Flag Syndrome” I had to limit my behavior? Why?

And a similar one:

“You can’t let your reproductive system constantly determine your behavior,” I said.

It confused me even more when other kids at my camp supported me and my gender expression (which without Mom there to scrutinize me sometimes even included flattening my chest with sports bras). They also said things like, "Your parents should be supporting you in your beliefs." Many girls didn't even shave their legs because they didn't believe in it, and their parents supported them. I thought to myself, Would Mom think these other kids' parents are too permissive? That they're bad parents? That they're radical? That they're not bringing their kids up right? And then of course I began to wonder if my parents were just plain conservative. In fact, I remember thinking that whether gender-bending was okay was a controversial issue, every bit as controversial as euthanasia, for example.

This line from Rachel came straight from my thoughts about my family: 

"...and here I am cooped up in this old-fashioned Victorian household!”

And another:

"You don’t even know me. I am a human being, and human beings make mistakes. Deep down I am a good person, and I also think that my degree of femininity is irrelevant and none of your business.”

There was Rachel, saying things to her parents and others that I could rarely work up the nerve to say to my parents.

Incidentally, I still want to write a novel with these characters, but I also want to come up with a different storyline.


Cathartic Writing #3: Survival of the Fittest

By the time I was 17, my thoughts about gender issues became even more complex. It was devastating to hear Mom tell me over and over that I had to start being more feminine, that someday I'd change my mind about these issues, bla bla bla. I don't think she knew just how deeply I was thinking about these things. I thought about them so deeply that I came to the conclusion that the reason people are so hung up on gender roles is based on the instinct to reproduce (years later I would learn that this sort of thing is called evolutionary psychology). Thus I came up with a story to illustrate this absurdity and how it hurts people. I wanted to write it as a dystopian graphic novel but unfortunately I had a really hard time with story structure and never finished the script, let alone a full fledged graphic novel. This is the synopsis of the story (which perhaps I will write someday, but I suspect a similar tale has been told), Survival of the Fittest:

Experimental mice live a secret science lab miles below the Earth's surface and, despite the experiments, have pretty decent lives. They are even friends with the cat that lives in the lab. Then there is a nuclear war that annihilates the entire human race, except the scientists in the lab. They realize that they are probably the only humans left and commit suicide. The mice realize that they, too, are likely the only mice left. But they try to figure out a way to both survive and repopulate their species.

In order of the species to continue, difficult decisions have to be made since resources are limited. First thing's first: The mice eat the bodies of the dead scientists. Soon, the food in the laboratory kitchen is gone as well, and the mice resort to killing and eating the cat. The main character, a teenage mouse named Renata (I chose the name because it means "rebirth"), can see where this is going, and is already horrified that the mice have killed the cat for food.

The Enforcers, a group of Nazi-like mice, comes to power. Renata's own 12-year-old brother even joins this group. In order to ensure reproduction and that the mice are well fed, the Enforcers kill for food anybody who cannot reproduce-- that includes mice that have passed reproductive age, mice who are gay, and mice who do not fit into their gender roles (because how can you reproduce if someone of the opposite sex doesn't even know WHAT sex you are?). Mice are pressured to start procreating as soon as they reach reproductive age.

Renata knows that this cannot end well, that ultimately everybody will be killed, not just those deemed "unfit". She leaves the lab and sets out on a two-week journey. She eventually finds a patch of land that was not affected by the nuclear war. There is some food and water-- enough to start over. So she journeys back to the lab to tell everybody. But when she gets there, her worst fears are confirmed-- just about everybody has been killed in the constant warring. She sees a mouse kill her brother, and in a fit of rage she grabs a gun and kills that mouse. She looks around and sees that she is literally the only one left. Exhausted and ultimately resigned, she carves a stone tablet that says "Never, ever forget." And then she turns the gun on herself.

Final Thoughts

It hurt that my parents couldn't see that I was a deep thinker and that I intensely entertained many issues. It seems that they just saw the potpourri of superficial behaviors and points of view as evidence of me not understanding the world rather than simply evidence of who I was. I know what you're thinking-- what if I had shown my parents the stories I had written? It sounds like a good idea, right? The written word is powerful, after all. In fact, transgender musician Ryan Cassata wrote this song to try to get it through to his father that he wasn't just going through a phase, that his identity as a boy was there to stay. But, as I've stated before, I was afraid to show Mom any of my stories. Secondly, I don't think she was ready to hear it. I don't think she would have understood what I was trying to tell her and what kind of mental anguish I was experiencing any better than before. If anything, I think it would have raised more questions than answers, and that's just a shame.

Fortunately, some people did understand what I wanted to say, and they listened. I remember in the summer of 1998 being up until 3 AM with one of my counselors, telling her about Survival of the Fittest and the ideas behind it. I recall that she told me that she was going to think about this story for days, because it really gave her pause. Yes, at age seventeen, I got someone seven years older than me to think deeply about something that she hadn't thought of before. She could see that I was a deep thinker. Many of my peers at camp also knew I was a deep thinker, and my old friend Jenna knew this as well. I know they appreciated that about me and just how deeply I thought about certain issues.

I can only hope now that my parents also appreciate it.

The Monster

In a recent post I ended by saying that I was feeling too damned good and optimistic to write my initial post idea about something I call The Monster. But of course the Monster had a reason to come back. He came back to visit today and now I'm enraged, and I can't get to the gym yet to burn him off.

What is the Monster? The Monster is a state of mind I get into when I find out I've done something wrong, or when I'm convinced that I've done something wrong. Last night my friend and I went to see a transgender musician/speaker. In between songs, I turned to my friend and whispered-- or I thought I whispered-- things like, "Oh, this one's my favorite" or "This is what I was telling you about earlier." I had no idea that anything was wrong.

Meanwhile, during the Q and A, I asked the musician/speaker about something that I've heard about-- that occasionally there are people who identify as one gender in childhood and then it changes in adulthood. I don't mean someone who came out in adulthood or someone who didn't know what to call themselves until adulthood. I mean someone whose gender identity honestly changed. And occasionally I have heard, too, about people who've identified as transgender in childhood and then changed in adulthood. I asked him if there has been any research on it. After the Q and A, it occurred to me that I possibly made him feel uncomfortable with that question, that it could be misconstrued as me implying that transgender people should suck it up and "outgrow it". I mean, it's not too unreasonable of a fear, especially since last August some people accused me of silencing rape victims with this blog post. So after the show was over, I went to the musician/speaker and told him that I hoped my question hadn't offended him. He assured me that it hadn't. Well, good.

OK, so I had taken that possibility into account, but of course I couldn't get through a social event without pissing people off. No. It never happens. The Universe won't let it happen. My friend told me today that when I commented between songs, I wasn't whispering and the whole fucking auditorium could hear me. She said that she heard people making annoyed noises. Of course it was a cue that I missed. It scares me because it makes me wonder just how out of touch with reality I am, that I'm the classic unreliable narrator.

Oh, but she was trying to help you by pointing it out to you. First of all, my friend also has Asperger's. More importantly, this isn't an isolated incident. This happens EVERY SINGLE TIME I'M IN A SOCIAL SITUATION WITH PEOPLE I DON'T KNOW. Every time I learn to keep something else in check, something unexpected comes up that I ended up screwing up on. People think I'm being serious when I'm joking, people think I'm angry when I'm not, and all around people misinterpret one thing after another about me.

As I alluded to above, a blog post I wrote was interpreted by people in a Meetup group that I was silencing rape victims. Another group (my sign language Meetup group) kicked me out. Why? They said that I was voicing too much when what I was doing was saying things to myself for clarification in my attempt to learn sign language. For example, "Oh, oh, okay. 'Dog,' got it." This apparently made the deaf people there feel unsafe. Then the straw that broke the camel's back happened one night when I ordered a large dessert and in the spirit of community tried to share it. They felt that I was forcing it on them and it made them feel alienated because I was the only one who ordered it. Four people left early because of me. But of course I had no clue that this was why they were leaving. It didn't even cross my mind.

The day after this past Thanksgiving, I went out to breakfast with my family and extended family. My cousin, with whom I'm close, announced that she was pregnant. Her aunt hadn't arrived yet, and she told us not to say anything and let her make the announcement again when her aunt came. I didn't hear her say that. So when my cousin announced her pregnancy again, I was confused. I turned to my cousin's aunt and said, "What, you didn't know? She announced it before you got here." In other words, I thought she had already known I and didn't get why my cousin was announcing it again. My cousin put her head in her hands, shook her head, and said, "Oh, God, Julie." Embarrassed over my stupidity-- I'm lucky my cousin's aunt didn't feel offended over this-- I walked out of the restaurant to cool down. I knew if I continued to sit there that I would shake and fight back tears. These misspoken words are, of course, the kind of thing that could get me fired if it happened in a job staff meeting. And I knew it. Getting kicked out of the sign language Meetup was still fresh in my mind, so this incident hit me pretty hard.

When I hear yet another bit of feedback after another fuck up, I'm not hearing "constructive criticism" or even an occasional "Don't do this". I'm hearing, "Here's yet another mistake you made." And after decades of this never-ending nitpicking from others, I just feel unbridled rage. Operant conditioning. Amygdala hijacking. That's what the Monster is: He's a intense fight or flight response that I reflexively get when I've done something wrong. My heart races, my fists clench, and I feel intense pins and needles in my face, probably from the sudden surge of adrenaline. It's anger: Anger at myself for annoying, offending, hurting, and scaring people. Anger that I have this intensely negative effect on so many people, that I'm a burden to them, that I habitually cause people distress. He comes to life in my head after I leave a situation thinking that things went well only to find out that I pissed everybody off. He comes to life after I offend people with a few misspoken words. I go into these situations reminding myself things like, "Remember, don't tell raunchy jokes" (I don't anyway unless I'm with people I know well), "Remember, phrase that question in a tactful way", and so forth. But there's always something I fail to take into account because it didn't occur to me to take it into account.

And, as you know from the opening to this blog post, often I assume I've done something wrong when I actually haven't. But if that happens it's often alongside something else upsetting people, something that it would never occur to me to think twice about. I just can't predict what's going to fly and what isn't. There was recently a situation involving someone I am in occasional correspondence with. I don't know him well, but he knows a bit about me from my blog posts, and has been very kind and helpful. That said, I would hate to make trouble for him in any way. I can't get into what the exact situation was, but the short version is that I was afraid I'd hurt him in some way based on something I had said to someone else whom we both know. I emailed him and told him that I was worried that I had done something horrible. He assured me that I hadn't done anything wrong and seemed genuinely puzzled as to why I was worried. He's been very compassionate towards me, so of course I know rationally that if I had done something wrong that a civil discussion-- not yelling, screaming, shunning, blocking, etc.-- would have ensued. But that's the exception, not the rule in my life.

And it's hard to think rationally when the Monster is in my brain, telling me in no uncertain terms that I have done something wrong. In this recent case, it was almost like watching a movie, all these possible scenarios of what the outcome could be running through my head. I wouldn't go so far as to say I heard literal voices, but there is a nagging voice of sorts in my head when this happens. And I'm sorry to say, it's usually the voices of my parents, Mom especially. They only really started to get what it was like to be me about 6 years ago, and before that I heard endless feedback about fuckups in social situations that sometimes included phrases like, "That's abnormal", or "What's wrong with you?" or "I can't believe you said/did that", "I'm wondering where I've failed as a parent.", "You never take advice," "You don't know how to interact with people", "You make people uncomfortable", or any number of phrases that start with the word "You". After decades of conditioning, it's hard to shrug that off.

Today I'm just very angry. Tomorrow I'm going with the same friend I saw yesterday to see a production of Hamlet at Wellesley. That's how the subject of my talking came up. OK, fine, I won't talk during the show.

But don't be surprised if I'm back here tomorrow reporting another social mistake that I made.

SEX! Now That I Have Your Attention, Read this Blog Post!

If you've landed here because of the word "sex", I'm sorry to disappoint that this is not a blog post meant to titillate you. But hey, the title got your attention, right? And that's exactly the point. Sex is something that is so heavily ingrained in our society, penetrating both the conscious and unconscious bits of our brains. In fact, that is the point of this long blog post: it is a huge part of everybody's lives. 

Well, almost everybody's. Believe it or not, there are exceptions to the rule.

Only in the past ten years (or less, perhaps) has society begun to accept the notion of life being on a spectrum. There's the autism spectrum, of course, which this blog was created to address. Even more recently-- I think in 2007 specifically-- did we begin to learn that gender exists on a spectrum, well beyond the binary that humankind has believed it to be (in most cultures) for thousands of years. I identify as a tomboy, somewhere in the middle of that gender spectrum. And finally, sex is found to exist on a spectrum, and I don't mean the gay-straight spectrum (though that is another spectrum that is becoming more accepted). It's a spectrum that includes being very sexually inclined at one end to being asexual at the other end.

The funny thing is that many of the same liberal, open-minded people who accept the autism spectrum, the sexual orientation spectrum, and even the gender spectrum-- one of the most difficult ideas for people to accept-- have an enormously difficult time accepting the sexual/asexual spectrum. Some people-- including professionals-- don't accept that it's a spectrum, believing that it's unthinkable that anybody could not have an interest in sex or at least a reduced interest in sex unless they have been abused in some way or unless there is something psychologically wrong with them. Sometime in the past decade, many people have been coming out as asexual. Yes, that's right. These are people who have no interest in sex. Some of them are interested in romantic relationships without sex, but some are not even interested in romantic relationships.

Then there are the demisexuals, who are in the middle of the spectrum. They're not sexual in the conventional sense, nor are they asexual (however, some people consider demisexuality to be a subset of asexuality). What is demisexuality? Well, before I define it, let's look at how most people experience romantic infatuation. First, a woman (or a gay man) might see a man and find him attractive. "Hey, that guy is cute. I'm going to go over and say hello". They say hello. The man might be interested in the woman (or the other man) because he finds her (or him) attractive. They know nothing about each other, but they continue to talk, trying to get to know each other as lust intensifies and tension builds. Depending on their inclinations and personal beliefs, they might have sex that very night. Or they might date first and have sex a few days, weeks, or months later. If infatuation usually didn't work out that way, many of us would not have been born.

Demisexuals experience infatuation in the exact opposite way, the way that I experience it: I am a demisexual. First I meet a guy and start talking to him as a friend. Nothing else is on my mind except that we're just talking, getting to know each other as friends. After I start to get to know the guy, I might find something attractive in his personality and then develop a crush. Only after I become infatuated with the guy as a person do thoughts of, "Wow, he's really cute!" enter my mind. And only sometime after that do the lustful thoughts finally surface. For this reason, online dating would never work for me.

For years I had chalked up my experiences to part of having Asperger's Syndrome, but only a few months ago did I learn that there was a term for my sexual orientation: demisexual. I have only experienced eight crushes (the last was in 2008), and only one reciprocated, back when I was 18. We did not "officially" date, let alone have sex: he was from Germany and only in the U.S. temporarily. We were friends with (limited) benefits, meaning we "fooled around" a little and that was it. I wasn't ready for sex at the time, and he didn't push me. If we had met more recently (I'm 33), I might have felt differently.

Last week I was at a Boston-area Meetup for people who identify as asexual and demisexual. Some of these people have had sex, some haven't yet, and some never will. One guy there had Asperger's Syndrome (many people with AS are asexual or demisexual), and another was a transgender man. The group was a nice blend of people, some representing more than one spectrum. We all found it cathartic to talk about our experiences: we all grew up wondering why everybody was always obsessed with getting dates and getting laid and why our parents-- sorry, our mothers-- were so worried about us. 

All of us had eerily similar stories about invasive questions our mothers had asked us. For example, when I was fourteen, my favorite actor was Alan Arkin and I was obsessed with some of his movies. Oh, so of course I must have had a crush on the then-sixty-year-old man. At least in my mother's perception. One night we rented Catch-22. My mother said, "We're going to watch Catch-22 with Alan Arkin-- sexy Alan Arkin." Then my mother suddenly asked, "Julie, what traits do you find attractive in boys?" Years later, when I told Dad this story, he told me, "You should have said 'Mom, you have the subtlety of a hand grenade.'" Other awkward, hand grenade-subtlety questions and comments from Mom included, "Look at [insert male celebrity's name here]. He's so cute. Don't you think?"; "Have you ever had a crush? Are you sure you haven't?" which later became "Have you ever had a crush? Are you sure you have?"; and "Are you sure you're not gay?". These questions made me feel worse, like there was something wrong with me. Others in the group felt the same way.

All of us in the group had one very specific experience in common: Growing up we were very uncomfortable with the topic of sex. It has been my experience that kids on the autism spectrum (and, according to psychologist Tony Attwood), girls especially are very uncomfortable with the topic of sex. These asexual/demisexual people, on the autism spectrum or not, had also been very uncomfortable (we eventually got over it). None of us could articulate why. But I have two ideas: 

1) Parents of kids with Asperger's sometimes get very uncomfortable with the things their children are obsessed with. My mother was very uncomfortable with my obsession with The Addams Family movie when I was 11-12. This was because she didn't understand why. Isn't it natural that people for whom sex is not on their radar, if at all, feel uncomfortable that the whole world seems to be obsessed with sex? 

When our mothers had tried to figure us out, they only made things worse. Universally, our mothers told us what a beautiful thing sex is between two people who loved each other. All of us had had the same reaction: "I don't feel the same way, but I'm expected to. And Mom is practically demanding I feel this way. There must be something wrong with me. And I must be narrow-minded for not feeling this way!"

2) For girls specifically, I think the pervasive objectification of women in movies does not help. In movies, sex is often depicted as a service that women give to men. And often women in movies are love/sexual interests first, characters second. I don't believe in censorship, but I think this aspect of movies is an important issue to discuss (perhaps in another blog post) and how it affects girls with Asperger's in particular. I think as a kid I must have thought on some level that I was supposed to eventually be like these women. It's harder as a kid with Asperger's to sort out these messages. 

At the Meetup, all of us recounted dealing with misunderstandings about asexuality/demisexuality in our adult lives. The women, myself included, were tired of going to their OB/GYNs and having to explain, "No, I'm not repressed; no, I wasn't abused; no I'm not religious; it just hasn't happened yet and I'm not losing any sleep over it." Likewise, we women also expressed frustration at the inevitable, patronizing response to this comment: "Oh, that's wonderful! You're waiting for the right person," as if our not-having-yet-been-laid status is due to discipline rather than a different set of inclinations. It's like praising a skinny person for being disciplined when the reality is that she may just not be as interested in food, not because she is a hardcore athlete.

And no, we're not afraid of sex, nor are we narrow-minded about it. Narrow-minded is an educator at the LGBTQ center in Manhattan telling me that I must have some "issue" because I can count on my fingers the number of crushes I've had.

Oh, and another misunderstanding is that we have some moral agenda. No, we are just differently inclined. We respect the inclinations of others as long as consenting adults are involved. We are sex-positive people who are just not as into sex as most others.

Listen to What Your Kids are Trying to Tell You

I was listening to a podcast about transgender children. The mother of a MTF transgender child was on the show, and another person asked her if she and her husband had had difficulty accepting the reality of their child claiming that "he" was really a girl. The mother said that it was not terribly difficult for her and her husband because her father was dyslexic. What does one have to do with the other? Her father is in his seventies; he grew up in an era when dyslexia was unheard of. When he tried to explain that reading was tough for him, the teachers wouldn't have any of it. They told him that he was lazy and wasn't trying. He tried to tell the teachers what was going on in his head-- that letters and numbers were confusing for him-- but they dismissed his explanations as mere excuses. Transgender children face similar obstacles: a natal boy tries to tell "his" mother that "he" is actually a girl (or vice-versa). Many parents respond to this by telling the child that "he" is wrong and doesn't know what "he" is talking about. Drawing on the father's experiences with trying to explain what was going through his head when he had a hard time reading, these parents gave their child the benefit of the doubt that the woman's father never had. The transgender child's parents said, "Who are we to say what's going on in our child's brain?"

As you might guess, I draw a similar parallel to my experiences with Asperger's Syndrome. To navigate the social world growing up, I had to use my cognitive faculties to accomplish social tasks that most other people do intuitively. As you also might have guessed, many parents and teachers told me that I was not trying. I can recall many instances of, as a child, being at social gatherings with my parents and one (or both) of them pulling me aside and telling me, "You're acting inappropriate", "You're too loud", or something else to that effect. Oftentimes I had no idea what I was doing "wrong". After the social gatherings, my mother would often remark, "You were very immature." There were many times at these social gatherings when I would be reduced to tears, frustrated and unable to understand why people (not just my parents) were reacting to me the way they were. Most parents assume they can bring their kids to social gatherings without incident, but whether or not such a gathering would go over smoothly for me was a crapshoot. 

These memories continue to haunt me in very vivid dreams, and sometimes I even wake up screaming and crying. In these dreams, I am that ten-year-old kid again, insisting that I'm trying to be "good" only to hear my parents say, "Well, I don't see you trying." My attempts to explain what was going on in my head were dismissed, and that hurt like hell. Another mantra I had to deal with often started with the words, "If you would just... [insert action here]." Okay. Tell the transgender child, "If you would just learn to be a boy" or the dyslexic child, "If you would just learn to read." I assure you that these words can cut deep. It's the verbal equivalent of somebody slowly plunging a rusty knife into your side.

Parents, please listen to your kids. You may be thirty or so years older than them, but sometimes they not only know more than you think, but in some cases more than you.

The Summer of 1998

The summer of 1998 doesn't seem like sixteen years ago. I'm not sure how long ago it seems, but it does not seem like sixteen years ago. I suppose what it comes down to was that it was a huge turning point in my life in terms of how I understood myself, the world, and in my place in it.

In June of 1998, just a few weeks before leaving for what (unknown to me) would be my final summer at Camp Negev, I made a huge discovery. Or, that is, I thought I did. After years of wondering what it was about me that was so different, wondering why I was always off in "my own world" and why I got obsessed with movies as well as any guy I had a crush on, I literally woke up one morning and thought to myself, "I have Obsessive-Compulsive Disorder." At the time, it was the closest I could come to labeling myself. Asperger's Syndrome was barely known at the time, and not having heard of it, OCD seemed like the only logical explanation. After a couple years, I realized that wasn't it (and, of course, I didn't know what it was). I compare my experience to that  of many transgender people, who have not yet heard the term "transgender", initially misidentifying themselves as gay. Kim Pearson, of Trans Youth Family Allies, calls this mislabeling "in the absence of reflection." The mother of an FTM transgender child, in an interview she talked about her son initially coming out as a lesbian "in the absence of reflection." In other words, her child looked out into the world and didn't see any examples of himself. He felt masculine and thought, "Masculine females are lesbians. That must be what I am." But that label never felt right to him. It was only when he heard the term "transgender" that everything finally began to make sense to him; he realized that he was actually a boy trapped in a girl's body. In my case, I looked out into the world, didn't see examples of myself, and thought, "People who get obsessed with things have OCD. That must be what I have." 

Although the OCD label proved to ultimately be wrong, the attempt at diagnosing myself that summer made me aware of something: some people are simply HARDWIRED DIFFERENTLY. This had never occurred to me before in my life. I realized, "If I'm hardwired differently and I know this, I can understand myself better." I came to Camp Negev that summer fully ready to not only embrace this understanding but also to be the best C.I.T. I could be-- at age 17, it was time for me to enter the C.I.T. program at camp. As it turned out, however, camp wasn't ready for me to take this next step. It turned out that the only reason that I got accepted to the program was because my counselor friend and mentor, Jonas, demanded that the camp accept me, which they were originally not going to do. I was allowed to be there, but they would not let me work with kids. For the first time, I realized, "They won't let me work with kids. It's not because I'm a malicious person or someone who would hurt the kids, but it's because I'm hardwired differently and they don't understand me." 

The other C.I.T.s, however, had known me already for three years and did understand me. Most of them thought the whole thing was unfair. The camp director told me I could work with kids second session (halfway through the summer) if I proved able to work with them. Do you sense a Catch-22 here? How could I possibly prove myself if they didn't want me near the kids? In fact, I recall constantly referencing Catch-22 throughout that summer. I was given kids second session, but apparently only after director and some other counselors were up until 3:00 A.M. discussing it. 

It was around this time that I began to be disillusioned with the social politics of Camp Negev and also see a greater hypocrisy in the world. I could have understood the concerns of the counselors and the director if most people on staff were responsible, caring counselors. But they weren't. Most of them simply worked at camp to be with their friends. I was appalled by some of their conduct. Many of them left their kids alone in the cabins and went off to the staff lounge to smoke weed. Some of them were nasty to the kids. I found this hypocritical at a camp that specifically preached social justice. In fact, during second session when I was at a staff meeting, a group of counselors was talking about an eleven-year-old kid with four-doses-of-Ritalin-per-day ADHD. They said that he was a horrible kid, that he was hopeless, and that he deliberately misbehaved. I did not take this lying down. I told the counselors that the kid was just that-- a kid. He was a kid with ADHD and, thinking of my own epiphany at the beginning of the summer, one who was hardwired differently. I tried to explain that to them but they just laughed at me. What made this even more disgusting was that the meeting was in a cabin cubby and some of the kids were in the next room. I warned the counselors that the kids might be listening. I know I would have at age eleven. Throughout the summer, many of these same counselors were very short with this kid who, as far as I could see, was well-meaning and not malicious. I remember thinking, "I hope when it's his turn to be a C.I.T. in 2004 he doesn't have to go through what I'm going through" (fortunately, years later I learned that he got into the C.I.T. program with no trouble).

From that summer I also took away another lesson that still resonates: It's not what your intentions are, or even what your actions are. It's about how well you cover up any mistakes that you make. Let's use the metaphor of getting caught with your pants down. Socially savvy people get caught not just with their pants down, but peeing or pooping on the floor, masturbating, you name it. They laugh, wipe their hands off, and pull up their pants. No big deal. As someone with Asperger's, when my metaphorical pants fell down (accidentally, of course) at camp, I could not pull them back up with the kind of finesse that the others could. To them, it looked like I committed a serious infraction. This is metaphor of course, but in terms of what actually happened? It was okay for these counselors to go off and smoke weed instead of watching the kids, or to browbeat a kid with ADHD because that was a socially acceptable thing to do. But if I tripped and fell and reflexively said, "Oh, shit!" when a kid was within earshot? Forget it. The whole universe collapsed on itself and within an hour everyone at camp knew and I was read as an unstable person who shouldn't be near kids. Never mind that these kids really liked me. I recall one fellow C.I.T. commenting that she was impressed by how much initiative I took in terms of spending time with the kids.

I should mention that since 1998, Camp Negev (not its real name) has changed drastically and the leadership is much better. It is no longer acceptable to leave the kids unattended or to smoke weed at the camp. As I understand it, it was in or around 2002 when some serious changes began to take place. I couldn't tell you exactly when it happened, because I could not get hired as a counselor. Further down the line I learned that there is Asperger's awareness training that takes place during orientation. However, since 1998 I have still seen this dynamic of "getting caught with one's pants down" in the real world. If anybody besides me gets caught screwing up, no big deal. It's an isolated incident. If I do? People read way too much into it and what my intentions are and what it means about me. In some cases, this type of misunderstanding has gotten me fired from jobs. 

And finally, one thing I began to notice in the summer of 1998 that sticks with me to this day is that when I think a situation is going downhill or that something is going on regarding me that I'm not aware of, I'm usually right. I may have had difficulty with social cues, but during the summer of 1998 I picked up on subtle cues that led me to correctly believe that people were scrutinizing me beyond the superficial (ie beyond "prove that you can work with kids"). I knew very clearly when they said one thing and all I was hearing was the tip of the iceberg. "We have some concerns." There was a time when I would have read that as, "We have some concerns." In fact, I think many people would. But ever since 1998, that word has been more loaded for me. "Concerns" means, "You are a problem and we are watching every move you make. And everything you do is subject to microscopic examination." Beyond this example, I can't articulate exactly what I mean. But I've seen it a number of times since then. I have had to learn to read more deeply into things than most people, because they don't have a history of social failure.

Despite everything, the summer of 1998 was overall a fun, memorable summer for me. But I still won't forget the frustration I felt in certain situations. And because of the lessons I took away from it that are still relevant, it does not seem as long ago as it should.

New York City- An Aspie's Paradise

If anybody were to ask me about the perfect place for a person with Asperger's Syndrome to live, my answer would be very simple: New York City. 

Why New York City?, you ask. Isn't it too crowded and overwhelming for people with sensory issues? Yes, but not everybody with Asperger's Syndrome has those issues. In fact, a good portion of them-- including me-- don't. And just to clarify, for many of us (me, at any rate) our discomfort with crowds is not about simply being around large numbers of people, but expecting to interact with them, all at the same time. For as long as I can remember, people have told me that I'm great in one-on-one or small group situations, but not so great in large group situations, such as parties. In fact, at parties, I usually befriend one or two people and go off in a corner with them to talk. Or if I need some break time, I just sit in the corner and draw. Asking someone with Asperger's Syndrome to enjoy large social groups is like asking a Catholic nun to be John F. Kennedy. 

But enough of that tangent, on with my endorsement of New York City as an Aspie's paradise. I lived in New York City for 13 1/2 years and for me it was incredibly easy to to forget that I had a condition that many regard as a disability (someone I met online who moved there from Maine for about a year made the same comment). Why? The answer is simple, I think. New York City is as diverse a city as you can get. There are all kinds of people who live there. I don't mean people of different ethnic backgrounds or even people from different religious affiliations (though there are those too). There are people with such a wide variety of temperaments and personalities, much more than I've seen anywhere else. I live in Boston now (long story), and while it's diverse enough that I feel comfortable, it's not quite the same as New York. Hell, a ride on the subways in each city will give you the idea of what I'm talking about.

You go to the F line in Brooklyn, for example. You wait in a small line to get through the turn style during rush hour. Someone can't find their Metrocard, and the person behind them butts in front of them. Typical New York impatience, but that's okay Everyone is used to it. You get on the train, heading for Manhattan. Five minutes in, someone gets on and starts screaming about Jesus and end times. A few minutes later, someone else begs for money. At the first stop in Manhattan, a group of guys gets on and does a wild performance for money, complete with back flips. Later, a man comes in dressed as a clown and does the nail-in-the-nose bit, also for money. As all these colorful people continue to board the train, you look around at everyone riding the subway. Some are trying to read and can't concentrate with all the noise. They roll their eyes. Others have a good laugh. Others still are ambivalent. In terms of the panhandler, many feel sorry for him and give him money. Trips on the New York City subway are never dull. And did I mention that the people who are riding the subway also have a variety of temperaments? Of course! Otherwise there wouldn't be such a wide variety of reactions!

We all know the stereotype, too, of there being a ton of crazy people in New York City. That said, I think it's also easier for the average person there to put things into perspective. Whereas a quirky behavior by someone with Asperger's might be viewed as "weird" or "scary" elsewhere, it might simply be viewed as "quirky" or even just part of the patchwork of personalities in New York City. With so many people acting unusual, it's just a lot easier to see the difference between "quirky" and "crazy". Plus, there are a lot of organizations that make it easier to find and make friends. There is the GLBTQIA center on 23rd Street, for example. How about the Asperger's support groups? Or groups for atheists? New York is also a place where I met a lot of polyamorous people (I'm not inclined that way, but my point is that New York is just very accepting of that kind of openness). And New York Public Library even hosts what's called an Anti-Prom, a prom for GLBTQIA teens. I suspect that New York might be the only major American city whose library would host such an event (except for San Francisco and, possibly, Chicago). You know all the stories about libraries being blackmailed by the religious right.

As for Boston? Well, there aren't lines for the subways, and in the six months that I've been here I saw a total of one solicitor and one "crazy person" on the trains. There's just not the daily exposure to oddness that there is in New York. Again, I think Boston is pretty accepting but I don't think in the same way that New York is. I don't know if, for example, the library would host an openly GLBTQIA prom. It just isn't nearly as diverse and I think Boston has somewhat more of a religious hold. But again, let's put this in perspective. Last year I lived in a small rural town in Maine for about five months. I hated it. It was homogenous-- lots of white, Christian people. Very, very few Jews, let alone those with any other religious background. And as for atheists? I'm sure they were in the closet along with the gays who live there. In fact, to meet interesting people I had to drive to Portland-- 75 miles each way. Everybody who was my age in the town in which I lived was married and had 2.5 kids. At one point, I posted on my Facebook status, "I miss NYC so much it hurts." It did hurt. I did not feel welcome, and I felt like many people thought there was something wrong with me. I did not feel that way in New York at all. As I said, in Boston I feel welcome, but let's just say that it's slightly easier for me to remember that I have Asperger's Syndrome, something many people regard as a disability.

So fellow Aspies, go to New York. It truly is an amazing city.