Showing posts with label Obsessive-Compulsive Disorder. Show all posts
Showing posts with label Obsessive-Compulsive Disorder. Show all posts

Sunday, June 27, 2021

Frustration, Anxiety, and Tension Part 2: A Witch's Brew of All Three

In my previous post, I discussed the way frustration, anxiety, and tension can mount as you try hard to better yourself, only to be dismissively told that you're not trying. But what happens when these demons overwhelm you and you end up doing something stupid and get into even more trouble than before?

One particular incident happened to me at age eighteen, on a Saturday morning in 1998 during my senior year of high school. I was taking a figure drawing class at a local university, and during that time in my life, I was dealing with a lot and my anxiety was like a raw exposed nerve.

First, I had just finished what would’ve been my final summer at Camp Negev. I had been in the C.I.T. program that summer, and it was clear that I would not be hired as a counselor the following year. Camp was the only place I’d ever felt comfortable, and it was being taken from me. This was coupled with knowing I would not be allowed to go on the gap-year Israel program affiliated with camp. Triple that with the stress of getting ready to apply to art school to study animation. It was becoming apparent from looking at the other students’ work that they were much better than me. Did I even have a chance of getting accepted to art school? That was quadrupled with the constant feeling that my parents didn’t understand me and didn’t support who I was. Even if not their intent, they often made me feel I had to change.

What many people didn’t understand was that I was thinking about these issues constantly, as if a little bug were in my ear whispering harsh criticisms to me: “You can’t draw well enough.” “You’re a horrible person and nobody at camp wants you back.” “You can’t spend a year in Israel because there’s something wrong with you and you aren’t fit to be around normal people.” “You’re not feminine enough and you should have outgrown that tomboy stage years ago if you want anybody to accept you.”


To make matters worse, I noticed early on that the teacher of the figure drawing class did not seem to like me, often talking to me in a condescending manner. I don’t remember specifics, but I do recall that I was trying to convince myself it was just my imagination. After all, my own parents often commented that I "misinterpreted" and "read too deeply into things"-- even when I knew damn well what I was looking at. One day when I was in the bathroom, a girl from the class commented, “I don’t like the way the teacher talks to you.” At least there I felt validated, that this wasn't my imagination. I was also glad to know that somebody was on my side.


As time went on, it was becoming increasingly clear that the teacher not only didn't like me but genuinely disliked me. I watched in resentment as she got along well with the other kids and really seemed to like them. They also seemed to like her, often laughing together like old friends. Her loud, boisterous laugh got on my nerves, as if it were rubbing in my face how the others could get along with her and I couldn’t because there was something wrong with me. What indeed was wrong with me, I wondered, that made her feel that she didn't have to be nice to me? Once, she even chastised me for arriving two minutes late for the 10:00 class. A week or two later, she assured another student who apologized for arriving at 10:07 that "seven minutes is no big deal."


At some point during the semester, something happened that made the teacher take me into the hallway in frustration. Unfortunately, I don’t remember what it was, but I am confident that if I found a record of the incident somewhere, it would come right back to me. We had a tense conversation that ended in some kind of truce, for lack of a better term. At some point during the discussion I mentioned that other teachers I’d had in other classes at the school liked me.


But the dynamic between us did not improve.


In the second-to-last week of class, I was particularly on edge, the raw exposed nerve particularly irritable from the accumulating tension over the past few months. The teacher did her signature laugh when talking to one of my classmates. For some reason, it was at that particular moment that I had reached my limit. I whispered, “Aw, shut up!” At least, I had meant to whisper it, but I accidentally said it loud enough for her to hear.


The teacher yelled, “Excuse me? Who did you just tell to shut up?”


The room fell silent, all eyes on the teacher and me.


In a panic, I stammered, “Nobody. Myself.” The teacher grabbed me by the wrist like I was an unruly child and pulled me into the hallway. Eyes narrowed into slits, she leaned forward, inches from my face. She yelled at me about every imperfection I had: speaking out of turn, getting openly frustrated with my artwork, not always following directions (I guess she thought this was intentional). At one point, she said, "I have tried putting myself in your shoes. I realize that there is something wrong with you." She also said, “You are going to fuck yourself over if you think you can go through life acting like this. I have had it with you. You make me feel like shit! Oh, you know all those other teachers who you said liked you? I’ve talked to all of them and they said they didn't like you. I have been pulling every string that I can to make sure you don’t go to this school.”


Humiliated from having heard my own self-criticism come out of another person, I sheepishly said, “My teachers in high school like me.” Her response was an even more exaggerated version of her signature laugh, as if it were the most ridiculous thing she had ever heard-- how could anybody like me? Then she told me I could come back into the room and work but I wasn’t allowed to talk to her. She said if I had questions to ask the other students.


Needless to say, I only went back to get my things. Then, I found a payphone and called my parents who, thankfully, had cell phones back then. They were at a restaurant with a friend. Just as their food arrived, they got my call and had to leave to pick me up. When I found out this information, I thought to myself, "God, my parents can't even have breakfast without me fucking things up. What is wrong with me?"


My parents arrived, and I waited outside with my mother while my father went in to talk to the teacher.


When Dad came back outside, he told Mom and me about the conversation he'd had with the teacher. He said that as soon as the teacher realized that the guy who came into the room was my father, she sent her students on break and vigorously shook his hand with both of hers, obviously knowing that she was in trouble. Then, when my dad called her out on saying that she was going to make sure I didn’t go to the school, she said, “Oh I just mean if she comes I’ll make sure she gets more psychological support.” Dad said, “I’m her father and I’ll be the one to decide what psychological support she needs, not you.”


In a desperate attempt to explain the situation to my parents, amid tears I said, "It's my OCD!", invoking my recent (and ultimately incorrect) self-diagnosis of obsessive-compulsive disorder to explain why I had the issues that I did. Dad shook his head and said, "No. This is just another case of you saying the first thing that pops into your head." On the car ride home, Mom told me that what I had done was inappropriate and that I needed "to learn to behave appropriately." It frustrated me that my parents seemed to think I was acting like this because I wanted to.

Don't get me wrong-- my parents were pretty pissed off at the teacher, but at the time they failed to grasp the reality of situations like the above. I had tried so many times over the years to explain that outbursts like these were the end result of trying to contain myself and the unbelievable anxiety I felt, but they never seemed to get it. Aside from the autism spectrum being mostly unknown, concepts like "chronic anxiety" were not topics of mainstream discussion. "Anxiety" was understood to be a momentary discomfort, not something that engulfed your entire life. I didn't even use the word "anxiety" to explain myself; rather, I often invoked a rush of adrenaline and the fight-or-flight response associated with it. I only even knew what these things were because Dad once told me about something he had read about them in college.


Years later, I found some notes Dad had taken when he called the school the following Monday to talk to the director of the Saturday program. Apparently the other teachers hadn't wanted me in their classes either.


This incident happened almost twenty-three years ago, and this type of issue that I had is largely under control. But the memory still hurts sometimes. It hurts because this was not the case of a teacher who was mean to everybody else also being mean to me. And the message that I got from the incident was one that I continued to get well into my adult life: That I am just "too much". I've been long expected to understand that I have had this kind of profound and negative effect on people that violates them in horrendous ways, and that their extreme reactions, while not ideal, are understandable under the circumstances. In fact, despite how upset my parents were with the teacher, they actually urged me to go back for the final class-- which I had no intention of doing-- because in doing so I would convey the message that I wanted to be "mature". That carries the implication that my teacher's response, while wrong, was not egregious. And no, I did not go back.


It also hurts because when I discussed this incident in autism groups in Facebook and asked if anybody had similar stories, all the "similar" stories I got were ones involving them as elementary school kids missing directions or crying in class only to get indignant hell from a teacher. None of them were stories about them in high school getting in trouble, let alone for saying something stupid. I suppose it's possible that they're just not writing about them because they're too embarrassed. But I get the impression that many of them learned early on that if they just shut up they would stay out of trouble. I don't know if it means that I was exceptionally bad at masking, that it was actually a sign that I was mentally stronger, a combination of the two, or neither.


I realize that we as a society have come lightyears since the '90s and that if this had happened today, there is a good possibility that the teacher would have been fired on the spot. But unfortunately, I was a teenager in the '90s and I have this story in my knapsack. It still hurts, and it's still confusing.

I still have the same self-doubts sometimes.

Sunday, December 28, 2014

Owning Your Emotions

I briefly alluded to "owning" one's emotions in my last blog post, and now I am going to expand further on that idea. By "owning" one's emotions, I mean acknowledging that they exist, not trying to repress them, and even being able to embrace them. For many years I felt like I was not allowed to own my emotions, that I had to justify to myself any odd thought or feeling that I had or else it meant there was something wrong with me. Even though I am an adult and my parents and others are meeting me with much more understanding than they did when I was growing up, or even when I was in my twenties, I find myself reflexively going through justifications in my mind that I shouldn't have to go through. In a recent post, "Thoughtcrime", I talked about having reflexively justified to myself why I had tears in my eyes when I learned that Dr. Jack Kevorkian died. I ultimately decided that if anybody told me there was something wrong with that then they could jump in the lake. I had tears in my eyes because I was sad and disappointed about the loss of someone whom I'd never even met. Yes, and? So what? That's how I reacted. Accept it. I thought to myself, If there's something wrong with me, then there's something wrong with me. I am 30 years old and I am entitled to feel however I feel. If it means that the world thinks I'm fucked up, then fuck the world. But the fact that I reflexively went through that ritual at all just shows how much I have been conditioned over the years, mostly (but not completely) by my parents.

The scenarios in which I felt the most like I was not allowed to own my emotions were those involving the intense crushes I developed on a few guys over the years. I can trace this issue back to the summer of 1997 when I was on my group trip to Israel with Camp Negev (not its real name) and its sister camps across North America. I had developed a huge crush on one of the counselors, Chuck (not his real name). At the time, he was only the second guy I had ever had a crush on. The first was a counselor named Jonas (also a pseudonym) from my summer camp. I was incredibly lucky that he had not only been accepting and understanding of this but also became my close friend and mentor and remained so for several years. When I met Chuck, I assumed that if I spent enough time with him the same thing would happen. So I followed him everywhere, even walking the perimeter of wherever we were staying in hopes that I would "accidentally/on purpose" run into him. Chuck tried to be nice to me-- and he was nice except for the occasional frustrated snap, after which he usually apologized-- but we sure as hell didn't become friends. The fact that I had spent so much time focusing on him instead of meeting other kids and enjoying learning about Israel eventually became a source of embarrassment to me. After I had time to reflect on that summer, I thought to myself, "Okay, obviously I don't know how to handle these types of situations. The next time I see that I am developing a crush on somebody, I will talk myself out of it."

That next time came the following summer, 1998, when I returned to Camp Negev for the C. I. T. program. As luck would have it, my crush was, once again, on yet another counselor, an Israeli named Omri (again, a fake name). We were somewhat buddy-buddy in the beginning. It began when the camp wouldn't let me work with kids because they were afraid that I might hurt them, physically and emotionally. The fact that anybody thought I was capable of doing something like that was shocking. I was hurt and had nobody to talk to. In a move that would make today's youth leaders and psychologists cringe, the executive staff essentially told me, "You made your bed. Now sleep in it." Not in those words, of course, but I wasn't given any kind of emotional support. People told me that it was my problem, one that I had brought upon myself, and that I had to solve it myself. At least, until Omri reached out to me.

My relationship with Omri began as my talking about the mistakes I had made in conducting myself in the past and knowing that I would have to grow up a bit in order to work with kids. But after a week or so we just talked about regular stuff. We laughed together and offered one another advice. Yes, I gave him advice about a couple things. It seemed like we were becoming friends. I asked him if he would eat with my family on Visitors' Day. He said, "Well, if one of my kids asks me they need to come first, but if not, I would be happy to." We had several interesting discussions in the first couple weeks, all of which ended with a big bear hug "goodnight". Omri impressed me as an intelligent, thoughtful, interesting guy-- all common denominators in my crushes, which never developed from an initial physical lust as with most people (it's called "demisexuality"-- Google it). Because I knew that this crush was inappropriate due to the age difference (I was 17 and he was 23), I realized that I had to rein myself in, just as I had promised. I set very strict boundaries for myself. I was not allowed to go out of my way to sit with Omri at meals. I was not to approach him to hang out until at night after his kids were put to bed. I was to accept that his obligation was, first and foremost, to his campers. I was proud of myself for having set these limits, and I was sure everything was going to be okay and that I could handle this situation and that Omri and I could be friends.

But it was not enough. After a couple weeks, Omri figured out that I had feelings for him and avoided me. On Visitors' Day, he had to eat with his kids and I accepted that. But in the evenings when I would come to him and ask, "Are we hanging out tonight?" he would often say he was "tired" or "busy". I promised myself that if he said those things that I would just turn around and leave, as was the mature thing to do. So that's just what I did. The mistake I made was looking back as I headed away and seeing him warmly embracing some campers and other counselors. Very few people appreciate the sheer willpower it took for me to just leave. Many have been perplexed as to why I couldn't just "let it go" or "accept it" or "give up". Do I really have to qualify that with an answer?

I will say this: even though I followed the strict rules I had set for myself, I realized that they did not work in keeping my emotions in check. I am embarrassed to admit that in the last week or so of camp I resorted to pulling the same stupid stunts I had on my Israel trip: taking late-night walks to "accidentally/on purpose" run into him-- sometimes as late as 2:30 AM-- just so I could see him and, if nothing else, claim one of his bear hugs. And in retrospect I'm sure both he and Chuck knew that I hadn't "accidentally" run into them. I couldn't help but feel great sorrow that my late night conversations with Omri that I had enjoyed during the first couple weeks were over. My racing heart and accompanying adrenaline rushes told me that I was not feeling okay about this, that this was a big deal to me. But I knew I couldn't blow up about it. I couldn't cry about it. I had to find other ways to tame my hijacked mind, especially if I wanted to work with kids second session. One night I sat alone in an office until I calmed down. Another time I took out my diary and wrote about how frustrated I was about how things were going. But my feelings still came and there was nothing I could do about them. They were there, whether or not I wanted them to be.

In the end, Omri wanted nothing to do with me. Back then I had not known about Asperger's Syndrome and just months earlier had misdiagnosed myself with Obsessive-Compulsive Disorder (OCD). I recall on the last night of camp crying to one of my friends and saying, "Everybody else is allowed to have feelings for someone, but not me. Why? Because I am obsessive-compulsive. I have to calculate everything I do." While everyone else who liked hanging out with Omri could take it for granted that they had the right to hang out for him, for me it was a privilege that had been revoked. I was not allowed to be his friend. I did not have his permission.

After I went home the next day I drove around with Dad and told him everything. I made him promise not to tell Mom. Why? Because I knew that she would tell me that if only I were more feminine in dress and behavior I wouldn't have scared Omri off. And that is ultimately the sort of thing that did happen when I finally came out to her about having crushes-- more on that later.

In 1999 I worked at a crappy summer camp and met someone who finally reciprocated my feelings. It was with him that I got my first kiss (and a little bit more). He was from Germany, however, so our semi-relationship didn't last (we still are in touch on Facebook, however). Then in the summers of 2000 and 2001 I also had crushes on people at a different camp, this time in Michigan, that I worked at. Both of them ended negatively. Long story short, Joe (fake name), an English guy two years younger than me, was not only friendly with me in the beginning but actually my friend. Then when he figured out I had a crush on him, he canceled his plans to go to Chicago with me at the end of the summer, AFTER I had bought the Amtrak tickets (I was lucky I was able to get a refund)! Instead, he went with someone else-- to GARY INDIANA. He told me I was "fucked up" and told other people I was stalking him. As in the situation with Omri, I found myself hurting and nothing I could say or do would stop the pain.

During my years in art school, I had a crush on Doug (yes, a pseudonym), one of my teachers. I am now embarrassed about this because, as discussed in the linked blog post, he was caught in an underage sex sting on the Internet. In any case, the story is familiar. We began on friendly terms and I eventually developed a crush on him. Just like Joe, Doug eventually said nasty things to me, but much worse. He said that I would never amount to anything. He also lied to keep me out of one of his classes. He told me the class was full, but I knew better. Once again, when I tried to repress my feelings-- telling myself that I was imagining things, or that he must have had a good reason, or that it's none of my business-- my pounding heart told me that the pain would not go away.

Doug was the last crush I had had for a long time. Then, in October 2007, I reunited on Facebook with Sergio (yes, fake name), a Mexican counselor eight years older than me who had been at Camp Negev in 1995. At camp, we had been buddies. When we reunited online, we hit it off immediately. We emailed each other several times a week. We once talked on Skype for two hours. He suggested that we make a film together. We talked about meeting the next time he came to New York City, where I was then living. Once he even emailed me at work to ask if I could talk on Skype (obviously I couldn't). As time passed, I began to feel warmly towards him. I couldn't tell you exactly when it turned into a crush. I can't quantify it, so please don't ask me to do so. But I decided to send him a package for Chanukah. It was a gesture of friendship, nothing more. He told me that he looked forward to receiving it. Sergio left for a vacation in Spain, and when he came back I asked him if he'd gotten the package. He said he hadn't.

Our frequent emails suddenly stopped dead. This was before Facebook added a chat function, so I couldn't IM him and ask what was going on. However, I knew when Sergio was online because Facebook used to have a page that would show you who was online. He was constantly commenting on people's posts but he wasn't answering my emails. I kept emailing him over the course of January, 2008, to ask him if he'd received my package. No answer. None. Zero. I was angry and hurt. And no amount of talking myself down could convince me that everything was okay, not when my heart was racing like I was running a marathon. I couldn't repress this emotion at all. I couldn't deny the pain that I was in. I even asked one of my cousins, "Why does this bother me?" He said, "Because you worked hard to do something for another person and he doesn't seem to care." Well, yeah, no shit. And I realized that this was a valid emotion that I should be able to own. But for years I'd made excuses for other people, told myself I was overreacting, and told myself that I had overstepped my bounds (ie, it's MY fault).

Both of  my parents (but my mother in particular) conditioned me that way. At first glance it appears that I told myself, without any prodding, to squash my feelings of hurt in terms of Omri, Joe, Doug, and the others. But I also learned this elsewhere. Whenever friends at school shunned me, Mom would blame the fallout on me and also tell me, "Relationships change." If I was upset because Jonas wouldn't write back when I sent him an email when I needed to talk (always about something I wasn't comfortable telling my parents), Mom told me that I needed to understand that he was in college and that he had a girlfriend and... take your pick. Any excuse. I shouldn't be upset about these things. Ever. Oh, and because Jonas lived hundreds of miles away, I shouldn't be focusing on him. At all. I would think that all of these things would be completely irrelevant to whether or not somebody should want to talk to you. So in the case of Omri, I took that advice when I walked away and sat in the camp office and squished my feelings. Same when Joe suddenly decided to go to boring Gary, Indiana instead of to Chicago with me. I said to myself, "Well, I guess he has his reasons and I have to respect that." And actually, when Mom found out about Joe a year later, that's exactly what she said, that I should have respected his decision.

As for Doug, Mom told me that I was misinterpreting constructive criticism as nasty comments. When I knew he had lied to keep me out of the class, Mom told me that I was imagining things. When it was clear that Doug had been lying, Mom told me that I had obviously pushed him to the edge and instead of telling me point blank he didn't want me in the class he lied because he didn't want to hurt my feelings. No. I'm not stupid. He didn't give a damn about hurting my feelings. He lied to avoid the inevitable confrontation (and he did eventually let me in the class, after I called his bullshit and essentially twisted his arm). Mom also told me that I should have respected his decision to keep me out of the class. But sorry, when somebody is paying $30,000 a year to go to college, you do not lock them out of a class just because you don't like them. You bite the bullet and deal with it like an adult.

And in terms of Sergio? When weeks passed without a response about the package despite clear activity on Facebook-- and despite three weeks of gently prodding Sergio for an answer to what was a simple yes-or-no question-- I stepped out of work one day and called Dad in hysterical tears. I told him that I had a crush on Sergio and that I was embarrassed about it. Dad told me that I had nothing to be embarrassed about, that Sergio was probably just busy and that he would get back to me, that he probably just hadn't gotten the package yet. I confessed to Dad that I had done something stupid: The night before, I had reached my limit. I had felt like Sergio was fucking with me. I had sent Sergio a barrage of emails in the period of about an hour demanding why he wouldn't respond, why he was ignoring me. Then I sent him a video message via Facebook asking the same thing, and in that video I broke down crying. I then unfriended him, saying things like, "I can take a hint. You don't want to talk to me. I guess I fucked up again. The mature thing to do is unfriend you." When I woke up the next day, thinking to myself, "What the hell did I do?" I apologized and tried to refriend him. But it was too late. He ultimately blocked me and we haven't spoken since.

When I couldn't hold it in anymore and I told my mother a few days later about what had happened, she started screaming at me that I had smothered Sergio, that I couldn't differentiate between a casual acquaintance and a friend (months later I showed a therapist the emails from Sergio. She assured me that it was very clear that he had been my friend). She told me that my sending him the package was overfamiliar and inappropriate... oh wait, I should tell you what was in it. You'll never believe the stuff I sent him: A clay dog that I had made, a drawing, a DVD of camp videos, and... gasp... a T-shirt. Yes, a T-shirt. I really sent him a T-shirt. No, really, I did. And you know what it said? It said, "Brooklyn 718." No, really, it said that. I swear.

Yes, both of my parents and others told me that sending a damned T-shirt was too personal. You'd think that I had sent Sergio a jock strap by the way they reacted. Mom told me that I should have just thought, "Well, I guess it made him uncomfortable when he didn't acknowledge the package." So in other words, I guess I should have said, "Oh, fiddlesticks. I guess I fucked up. Next time I'll walk on even more eggshells and make sure I don't fuck up."

Mom also played the "relationships change" card (Relationships change in three months? Really?). In a pathetic attempt to tell me a "good lie", Mom even said that maybe Sergio cared about me so much that he was also trying to protect me from getting emotionally hurt in the long run by backing out when he did. I guess Mom forgot that this very transparent lie wouldn't work on a 27-year-old. That bad "good lie" (which perhaps she was telling herself as well as me) reminds me of this scene from a Simpsons episode:


Lisa: So there I am, being nice to Alex, and she takes all of my friends and ditches me!
Marge: I'm sure they didn't ditch you, honey. Maybe they went off to plan a surprise party for you.

That scene resonates with me in so many ways. I can't begin to tell you how many times Mom has said things remarkably similar to that.

My dad and my brother even commented on my weight (I was overweight at the time) and my tomboyish appearance, saying that Sergio wouldn't have reacted as he did had I looked-- and acted-- more feminine. My brother especially thought my appearance might have been what drove away Sergio. Never mind that he wasn't seeing how I looked each day in real time, just a few photos.

One woman played the Men are From Mars, Women are From Venus card, saying that I have to accept that men need more time to process things. Oh yeah, doesn't matter how the woman is feeling. She has to just suck it up and wait for the man to be ready to talk. It's always about women being nurturers and men just doing what they do. To this day I hate that book almost entirely because of that conversation. Another case where I couldn't just own my feelings. Everybody and their grandmother was coming up with some simplistic, stupid answer that I was just supposed to say, "Oh, okay" to.

The expression I kept hearing from everyone around me was, "Let it go." Let it go? Funny, when I was a kid and I would be perplexed about why girls would go ballistic if their crush didn't like them back, Mom would say, "Well you have to understand that this is a special feeling." But of course when I get the arrow in the butt it means I'm crazy and I just have to "let it go." Oh, hey, after all, I'm just obsessive, right? And obsessive feelings aren't real, are they?

One night the song "I am a Rock" by Simon and Garfunkel played relentlessly in my head. The lyrics took on an entirely new meaning for me. I ended up going to therapy, and it took me 1 1/2 years to get over Sergio.  The first shrink I went to was ridiculous. I told him about how Sergio and I had talked about meeting in New York the next time he came and that I had looked forward to riding the Cyclone roller coaster at Coney Island with him-- we both love roller coasters. And what did he say? He said, "Don't you have other friends you can do that with?"

There was a time when I would have tried to make myself look on the bright side, that yes I do have friends who would ride the Cyclone with me. In fact, one night in 1998 when Omri and I didn't get to hang out, I thought to myself, "Well I had a really interesting discussion tonight with this other person. That's positive." But I look back and see that then I was repressing my feelings. And when my shrink asked me if I had other friends I could ride roller coasters with, I told him exactly what I thought: "I want to ride the roller coaster with Sergio." I was finally owning my feelings. I wanted to ride the goddamned Cyclone with Sergio, and I wasn't going to pretend I felt differently. Needless to say, I found a new shrink.

One thing that Mom said when this nonsense with Sergio happened was, "Why do you always fall for guys who are out of your reach?" My answer is this: It's an unfortunate coincidence (except for the one guy who I was briefly in a semi-relationship with), but she seemed to think I was doing it on purpose. She even asked me if I had ever had a crush on my best friend, Eric (not his real name). I supposed she was desperate that I have feelings for someone who lived nearby. No, I don't have a crush on Eric. I never have. It would be like having a crush on a first-degree relative. And jeez, I would think that Mom (and anybody else) would know that you can't control who you fall for.

Sergio eventually unblocked me and accepted my subsequent friend request. But he still didn't answer my emails. And when summer came and he posted a profile picture of himself standing on the train platform of what was clearly Newark Airport Station on New Jersey Transit, I was crushed. He had come to New York and hadn't bothered to contact me. I was supposed to squish those feelings. And a few months later Sergio unfriended me again. When I tried to refriend him, he blocked me again. Mercifully, I haven't had any crushes in seven years, since Sergio.

Was I stupid in terms of the way I panicked and sent Sergio the barrage of emails and that video in which I broke down crying? Yes. But he also drove me to it.  And what also drove me to it was the years of accumulated bad experiences in which I couldn't own my emotions, in which every thought I had had to be repressed to keep not just me sane, but also my parents. But it didn't keep me sane. It only delayed the inevitable. I cried a lot growing up and both of my parents often chalked up my frustrated tears to overreacting and immaturity. But the repression didn't work and it sure as hell didn't make me sane. My racing heart kept telling me what I knew logically, that something was wrong and that I was hurting. Sometimes we have to cry, and sometimes we have to cry hysterically. Sometimes we have to scream and shout explitives. Sometimes we have to punch a pillow or break an expensive vase. We have to own our feelings, even if other people don't understand them. And as for the rest of you, you have to let us own these feelings. You have to accept that we have them even if they make you uncomfortable. Even if you don't know what to say, don't just tell the person to let it go. Or, if you think they should let it go, give them advice as to how instead of hoping the three magic words will make a difference.

And for crying out loud, what is so difficult about saying the following?: "You know what, I confess that I don't understand how this is making you feel, but I imagine it must be frustrating and painful." That helps a lot more than you would think.

Finally, I want to end this post with a metaphor. As I mentioned earlier, people held me to different standards in terms of how they felt I should handle crushes. The metaphor is this: Sometimes people get very hungry, and there is a giant bacon cheeseburger nearby. Most people take it for granted that they can eat the bacon cheeseburger, or at least get a whiff of it. As for me? I was expected to be on a perpetual religious fast.

Sunday, May 25, 2014

The Summer of 1998

The summer of 1998 doesn't seem like sixteen years ago. I'm not sure how long ago it seems, but it does not seem like sixteen years ago. I suppose what it comes down to was that it was a huge turning point in my life in terms of how I understood myself, the world, and in my place in it.

In June of 1998, just a few weeks before leaving for what (unknown to me) would be my final summer at Camp Negev, I made a huge discovery. Or, that is, I thought I did. After years of wondering what it was about me that was so different, wondering why I was always off in "my own world" and why I got obsessed with movies as well as any guy I had a crush on, I literally woke up one morning and thought to myself, "I have Obsessive-Compulsive Disorder." At the time, it was the closest I could come to labeling myself. Asperger's Syndrome was barely known at the time, and not having heard of it, OCD seemed like the only logical explanation. After a couple years, I realized that wasn't it (and, of course, I didn't know what it was). I compare my experience to that  of many transgender people, who have not yet heard the term "transgender", initially misidentifying themselves as gay. Kim Pearson, of Trans Youth Family Allies, calls this mislabeling "in the absence of reflection." The mother of an FTM transgender child, in an interview she talked about her son initially coming out as a lesbian "in the absence of reflection." In other words, her child looked out into the world and didn't see any examples of himself. He felt masculine and thought, "Masculine females are lesbians. That must be what I am." But that label never felt right to him. It was only when he heard the term "transgender" that everything finally began to make sense to him; he realized that he was actually a boy trapped in a girl's body. In my case, I looked out into the world, didn't see examples of myself, and thought, "People who get obsessed with things have OCD. That must be what I have." 

Although the OCD label proved to ultimately be wrong, the attempt at diagnosing myself that summer made me aware of something: some people are simply HARDWIRED DIFFERENTLY. This had never occurred to me before in my life. I realized, "If I'm hardwired differently and I know this, I can understand myself better." I came to Camp Negev that summer fully ready to not only embrace this understanding but also to be the best C.I.T. I could be-- at age 17, it was time for me to enter the C.I.T. program at camp. As it turned out, however, camp wasn't ready for me to take this next step. It turned out that the only reason that I got accepted to the program was because my counselor friend and mentor, Jonas, demanded that the camp accept me, which they were originally not going to do. I was allowed to be there, but they would not let me work with kids. For the first time, I realized, "They won't let me work with kids. It's not because I'm a malicious person or someone who would hurt the kids, but it's because I'm hardwired differently and they don't understand me." 

The other C.I.T.s, however, had known me already for three years and did understand me. Most of them thought the whole thing was unfair. The camp director told me I could work with kids second session (halfway through the summer) if I proved able to work with them. Do you sense a Catch-22 here? How could I possibly prove myself if they didn't want me near the kids? In fact, I recall constantly referencing Catch-22 throughout that summer. I was given kids second session, but apparently only after director and some other counselors were up until 3:00 A.M. discussing it. 

It was around this time that I began to be disillusioned with the social politics of Camp Negev and also see a greater hypocrisy in the world. I could have understood the concerns of the counselors and the director if most people on staff were responsible, caring counselors. But they weren't. Most of them simply worked at camp to be with their friends. I was appalled by some of their conduct. Many of them left their kids alone in the cabins and went off to the staff lounge to smoke weed. Some of them were nasty to the kids. I found this hypocritical at a camp that specifically preached social justice. In fact, during second session when I was at a staff meeting, a group of counselors was talking about an eleven-year-old kid with four-doses-of-Ritalin-per-day ADHD. They said that he was a horrible kid, that he was hopeless, and that he deliberately misbehaved. I did not take this lying down. I told the counselors that the kid was just that-- a kid. He was a kid with ADHD and, thinking of my own epiphany at the beginning of the summer, one who was hardwired differently. I tried to explain that to them but they just laughed at me. What made this even more disgusting was that the meeting was in a cabin cubby and some of the kids were in the next room. I warned the counselors that the kids might be listening. I know I would have at age eleven. Throughout the summer, many of these same counselors were very short with this kid who, as far as I could see, was well-meaning and not malicious. I remember thinking, "I hope when it's his turn to be a C.I.T. in 2004 he doesn't have to go through what I'm going through" (fortunately, years later I learned that he got into the C.I.T. program with no trouble).

From that summer I also took away another lesson that still resonates: It's not what your intentions are, or even what your actions are. It's about how well you cover up any mistakes that you make. Let's use the metaphor of getting caught with your pants down. Socially savvy people get caught not just with their pants down, but peeing or pooping on the floor, masturbating, you name it. They laugh, wipe their hands off, and pull up their pants. No big deal. As someone with Asperger's, when my metaphorical pants fell down (accidentally, of course) at camp, I could not pull them back up with the kind of finesse that the others could. To them, it looked like I committed a serious infraction. This is metaphor of course, but in terms of what actually happened? It was okay for these counselors to go off and smoke weed instead of watching the kids, or to browbeat a kid with ADHD because that was a socially acceptable thing to do. But if I tripped and fell and reflexively said, "Oh, shit!" when a kid was within earshot? Forget it. The whole universe collapsed on itself and within an hour everyone at camp knew and I was read as an unstable person who shouldn't be near kids. Never mind that these kids really liked me. I recall one fellow C.I.T. commenting that she was impressed by how much initiative I took in terms of spending time with the kids.

I should mention that since 1998, Camp Negev (not its real name) has changed drastically and the leadership is much better. It is no longer acceptable to leave the kids unattended or to smoke weed at the camp. As I understand it, it was in or around 2002 when some serious changes began to take place. I couldn't tell you exactly when it happened, because I could not get hired as a counselor. Further down the line I learned that there is Asperger's awareness training that takes place during orientation. However, since 1998 I have still seen this dynamic of "getting caught with one's pants down" in the real world. If anybody besides me gets caught screwing up, no big deal. It's an isolated incident. If I do? People read way too much into it and what my intentions are and what it means about me. In some cases, this type of misunderstanding has gotten me fired from jobs. 

And finally, one thing I began to notice in the summer of 1998 that sticks with me to this day is that when I think a situation is going downhill or that something is going on regarding me that I'm not aware of, I'm usually right. I may have had difficulty with social cues, but during the summer of 1998 I picked up on subtle cues that led me to correctly believe that people were scrutinizing me beyond the superficial (ie beyond "prove that you can work with kids"). I knew very clearly when they said one thing and all I was hearing was the tip of the iceberg. "We have some concerns." There was a time when I would have read that as, "We have some concerns." In fact, I think many people would. But ever since 1998, that word has been more loaded for me. "Concerns" means, "You are a problem and we are watching every move you make. And everything you do is subject to microscopic examination." Beyond this example, I can't articulate exactly what I mean. But I've seen it a number of times since then. I have had to learn to read more deeply into things than most people, because they don't have a history of social failure.

Despite everything, the summer of 1998 was overall a fun, memorable summer for me. But I still won't forget the frustration I felt in certain situations. And because of the lessons I took away from it that are still relevant, it does not seem as long ago as it should.




Saturday, March 19, 2011

Thursday, February 17, 2011