Showing posts with label OCD. Show all posts
Showing posts with label OCD. Show all posts

Sunday, June 27, 2021

Frustration, Anxiety, and Tension Part 2: A Witch's Brew of All Three

In my previous post, I discussed the way frustration, anxiety, and tension can mount as you try hard to better yourself, only to be dismissively told that you're not trying. But what happens when these demons overwhelm you and you end up doing something stupid and get into even more trouble than before?

One particular incident happened to me at age eighteen, on a Saturday morning in 1998 during my senior year of high school. I was taking a figure drawing class at a local university, and during that time in my life, I was dealing with a lot and my anxiety was like a raw exposed nerve.

First, I had just finished what would’ve been my final summer at Camp Negev. I had been in the C.I.T. program that summer, and it was clear that I would not be hired as a counselor the following year. Camp was the only place I’d ever felt comfortable, and it was being taken from me. This was coupled with knowing I would not be allowed to go on the gap-year Israel program affiliated with camp. Triple that with the stress of getting ready to apply to art school to study animation. It was becoming apparent from looking at the other students’ work that they were much better than me. Did I even have a chance of getting accepted to art school? That was quadrupled with the constant feeling that my parents didn’t understand me and didn’t support who I was. Even if not their intent, they often made me feel I had to change.

What many people didn’t understand was that I was thinking about these issues constantly, as if a little bug were in my ear whispering harsh criticisms to me: “You can’t draw well enough.” “You’re a horrible person and nobody at camp wants you back.” “You can’t spend a year in Israel because there’s something wrong with you and you aren’t fit to be around normal people.” “You’re not feminine enough and you should have outgrown that tomboy stage years ago if you want anybody to accept you.”


To make matters worse, I noticed early on that the teacher of the figure drawing class did not seem to like me, often talking to me in a condescending manner. I don’t remember specifics, but I do recall that I was trying to convince myself it was just my imagination. After all, my own parents often commented that I "misinterpreted" and "read too deeply into things"-- even when I knew damn well what I was looking at. One day when I was in the bathroom, a girl from the class commented, “I don’t like the way the teacher talks to you.” At least there I felt validated, that this wasn't my imagination. I was also glad to know that somebody was on my side.


As time went on, it was becoming increasingly clear that the teacher not only didn't like me but genuinely disliked me. I watched in resentment as she got along well with the other kids and really seemed to like them. They also seemed to like her, often laughing together like old friends. Her loud, boisterous laugh got on my nerves, as if it were rubbing in my face how the others could get along with her and I couldn’t because there was something wrong with me. What indeed was wrong with me, I wondered, that made her feel that she didn't have to be nice to me? Once, she even chastised me for arriving two minutes late for the 10:00 class. A week or two later, she assured another student who apologized for arriving at 10:07 that "seven minutes is no big deal."


At some point during the semester, something happened that made the teacher take me into the hallway in frustration. Unfortunately, I don’t remember what it was, but I am confident that if I found a record of the incident somewhere, it would come right back to me. We had a tense conversation that ended in some kind of truce, for lack of a better term. At some point during the discussion I mentioned that other teachers I’d had in other classes at the school liked me.


But the dynamic between us did not improve.


In the second-to-last week of class, I was particularly on edge, the raw exposed nerve particularly irritable from the accumulating tension over the past few months. The teacher did her signature laugh when talking to one of my classmates. For some reason, it was at that particular moment that I had reached my limit. I whispered, “Aw, shut up!” At least, I had meant to whisper it, but I accidentally said it loud enough for her to hear.


The teacher yelled, “Excuse me? Who did you just tell to shut up?”


The room fell silent, all eyes on the teacher and me.


In a panic, I stammered, “Nobody. Myself.” The teacher grabbed me by the wrist like I was an unruly child and pulled me into the hallway. Eyes narrowed into slits, she leaned forward, inches from my face. She yelled at me about every imperfection I had: speaking out of turn, getting openly frustrated with my artwork, not always following directions (I guess she thought this was intentional). At one point, she said, "I have tried putting myself in your shoes. I realize that there is something wrong with you." She also said, “You are going to fuck yourself over if you think you can go through life acting like this. I have had it with you. You make me feel like shit! Oh, you know all those other teachers who you said liked you? I’ve talked to all of them and they said they didn't like you. I have been pulling every string that I can to make sure you don’t go to this school.”


Humiliated from having heard my own self-criticism come out of another person, I sheepishly said, “My teachers in high school like me.” Her response was an even more exaggerated version of her signature laugh, as if it were the most ridiculous thing she had ever heard-- how could anybody like me? Then she told me I could come back into the room and work but I wasn’t allowed to talk to her. She said if I had questions to ask the other students.


Needless to say, I only went back to get my things. Then, I found a payphone and called my parents who, thankfully, had cell phones back then. They were at a restaurant with a friend. Just as their food arrived, they got my call and had to leave to pick me up. When I found out this information, I thought to myself, "God, my parents can't even have breakfast without me fucking things up. What is wrong with me?"


My parents arrived, and I waited outside with my mother while my father went in to talk to the teacher.


When Dad came back outside, he told Mom and me about the conversation he'd had with the teacher. He said that as soon as the teacher realized that the guy who came into the room was my father, she sent her students on break and vigorously shook his hand with both of hers, obviously knowing that she was in trouble. Then, when my dad called her out on saying that she was going to make sure I didn’t go to the school, she said, “Oh I just mean if she comes I’ll make sure she gets more psychological support.” Dad said, “I’m her father and I’ll be the one to decide what psychological support she needs, not you.”


In a desperate attempt to explain the situation to my parents, amid tears I said, "It's my OCD!", invoking my recent (and ultimately incorrect) self-diagnosis of obsessive-compulsive disorder to explain why I had the issues that I did. Dad shook his head and said, "No. This is just another case of you saying the first thing that pops into your head." On the car ride home, Mom told me that what I had done was inappropriate and that I needed "to learn to behave appropriately." It frustrated me that my parents seemed to think I was acting like this because I wanted to.

Don't get me wrong-- my parents were pretty pissed off at the teacher, but at the time they failed to grasp the reality of situations like the above. I had tried so many times over the years to explain that outbursts like these were the end result of trying to contain myself and the unbelievable anxiety I felt, but they never seemed to get it. Aside from the autism spectrum being mostly unknown, concepts like "chronic anxiety" were not topics of mainstream discussion. "Anxiety" was understood to be a momentary discomfort, not something that engulfed your entire life. I didn't even use the word "anxiety" to explain myself; rather, I often invoked a rush of adrenaline and the fight-or-flight response associated with it. I only even knew what these things were because Dad once told me about something he had read about them in college.


Years later, I found some notes Dad had taken when he called the school the following Monday to talk to the director of the Saturday program. Apparently the other teachers hadn't wanted me in their classes either.


This incident happened almost twenty-three years ago, and this type of issue that I had is largely under control. But the memory still hurts sometimes. It hurts because this was not the case of a teacher who was mean to everybody else also being mean to me. And the message that I got from the incident was one that I continued to get well into my adult life: That I am just "too much". I've been long expected to understand that I have had this kind of profound and negative effect on people that violates them in horrendous ways, and that their extreme reactions, while not ideal, are understandable under the circumstances. In fact, despite how upset my parents were with the teacher, they actually urged me to go back for the final class-- which I had no intention of doing-- because in doing so I would convey the message that I wanted to be "mature". That carries the implication that my teacher's response, while wrong, was not egregious. And no, I did not go back.


It also hurts because when I discussed this incident in autism groups in Facebook and asked if anybody had similar stories, all the "similar" stories I got were ones involving them as elementary school kids missing directions or crying in class only to get indignant hell from a teacher. None of them were stories about them in high school getting in trouble, let alone for saying something stupid. I suppose it's possible that they're just not writing about them because they're too embarrassed. But I get the impression that many of them learned early on that if they just shut up they would stay out of trouble. I don't know if it means that I was exceptionally bad at masking, that it was actually a sign that I was mentally stronger, a combination of the two, or neither.


I realize that we as a society have come lightyears since the '90s and that if this had happened today, there is a good possibility that the teacher would have been fired on the spot. But unfortunately, I was a teenager in the '90s and I have this story in my knapsack. It still hurts, and it's still confusing.

I still have the same self-doubts sometimes.

Sunday, May 25, 2014

The Summer of 1998

The summer of 1998 doesn't seem like sixteen years ago. I'm not sure how long ago it seems, but it does not seem like sixteen years ago. I suppose what it comes down to was that it was a huge turning point in my life in terms of how I understood myself, the world, and in my place in it.

In June of 1998, just a few weeks before leaving for what (unknown to me) would be my final summer at Camp Negev, I made a huge discovery. Or, that is, I thought I did. After years of wondering what it was about me that was so different, wondering why I was always off in "my own world" and why I got obsessed with movies as well as any guy I had a crush on, I literally woke up one morning and thought to myself, "I have Obsessive-Compulsive Disorder." At the time, it was the closest I could come to labeling myself. Asperger's Syndrome was barely known at the time, and not having heard of it, OCD seemed like the only logical explanation. After a couple years, I realized that wasn't it (and, of course, I didn't know what it was). I compare my experience to that  of many transgender people, who have not yet heard the term "transgender", initially misidentifying themselves as gay. Kim Pearson, of Trans Youth Family Allies, calls this mislabeling "in the absence of reflection." The mother of an FTM transgender child, in an interview she talked about her son initially coming out as a lesbian "in the absence of reflection." In other words, her child looked out into the world and didn't see any examples of himself. He felt masculine and thought, "Masculine females are lesbians. That must be what I am." But that label never felt right to him. It was only when he heard the term "transgender" that everything finally began to make sense to him; he realized that he was actually a boy trapped in a girl's body. In my case, I looked out into the world, didn't see examples of myself, and thought, "People who get obsessed with things have OCD. That must be what I have." 

Although the OCD label proved to ultimately be wrong, the attempt at diagnosing myself that summer made me aware of something: some people are simply HARDWIRED DIFFERENTLY. This had never occurred to me before in my life. I realized, "If I'm hardwired differently and I know this, I can understand myself better." I came to Camp Negev that summer fully ready to not only embrace this understanding but also to be the best C.I.T. I could be-- at age 17, it was time for me to enter the C.I.T. program at camp. As it turned out, however, camp wasn't ready for me to take this next step. It turned out that the only reason that I got accepted to the program was because my counselor friend and mentor, Jonas, demanded that the camp accept me, which they were originally not going to do. I was allowed to be there, but they would not let me work with kids. For the first time, I realized, "They won't let me work with kids. It's not because I'm a malicious person or someone who would hurt the kids, but it's because I'm hardwired differently and they don't understand me." 

The other C.I.T.s, however, had known me already for three years and did understand me. Most of them thought the whole thing was unfair. The camp director told me I could work with kids second session (halfway through the summer) if I proved able to work with them. Do you sense a Catch-22 here? How could I possibly prove myself if they didn't want me near the kids? In fact, I recall constantly referencing Catch-22 throughout that summer. I was given kids second session, but apparently only after director and some other counselors were up until 3:00 A.M. discussing it. 

It was around this time that I began to be disillusioned with the social politics of Camp Negev and also see a greater hypocrisy in the world. I could have understood the concerns of the counselors and the director if most people on staff were responsible, caring counselors. But they weren't. Most of them simply worked at camp to be with their friends. I was appalled by some of their conduct. Many of them left their kids alone in the cabins and went off to the staff lounge to smoke weed. Some of them were nasty to the kids. I found this hypocritical at a camp that specifically preached social justice. In fact, during second session when I was at a staff meeting, a group of counselors was talking about an eleven-year-old kid with four-doses-of-Ritalin-per-day ADHD. They said that he was a horrible kid, that he was hopeless, and that he deliberately misbehaved. I did not take this lying down. I told the counselors that the kid was just that-- a kid. He was a kid with ADHD and, thinking of my own epiphany at the beginning of the summer, one who was hardwired differently. I tried to explain that to them but they just laughed at me. What made this even more disgusting was that the meeting was in a cabin cubby and some of the kids were in the next room. I warned the counselors that the kids might be listening. I know I would have at age eleven. Throughout the summer, many of these same counselors were very short with this kid who, as far as I could see, was well-meaning and not malicious. I remember thinking, "I hope when it's his turn to be a C.I.T. in 2004 he doesn't have to go through what I'm going through" (fortunately, years later I learned that he got into the C.I.T. program with no trouble).

From that summer I also took away another lesson that still resonates: It's not what your intentions are, or even what your actions are. It's about how well you cover up any mistakes that you make. Let's use the metaphor of getting caught with your pants down. Socially savvy people get caught not just with their pants down, but peeing or pooping on the floor, masturbating, you name it. They laugh, wipe their hands off, and pull up their pants. No big deal. As someone with Asperger's, when my metaphorical pants fell down (accidentally, of course) at camp, I could not pull them back up with the kind of finesse that the others could. To them, it looked like I committed a serious infraction. This is metaphor of course, but in terms of what actually happened? It was okay for these counselors to go off and smoke weed instead of watching the kids, or to browbeat a kid with ADHD because that was a socially acceptable thing to do. But if I tripped and fell and reflexively said, "Oh, shit!" when a kid was within earshot? Forget it. The whole universe collapsed on itself and within an hour everyone at camp knew and I was read as an unstable person who shouldn't be near kids. Never mind that these kids really liked me. I recall one fellow C.I.T. commenting that she was impressed by how much initiative I took in terms of spending time with the kids.

I should mention that since 1998, Camp Negev (not its real name) has changed drastically and the leadership is much better. It is no longer acceptable to leave the kids unattended or to smoke weed at the camp. As I understand it, it was in or around 2002 when some serious changes began to take place. I couldn't tell you exactly when it happened, because I could not get hired as a counselor. Further down the line I learned that there is Asperger's awareness training that takes place during orientation. However, since 1998 I have still seen this dynamic of "getting caught with one's pants down" in the real world. If anybody besides me gets caught screwing up, no big deal. It's an isolated incident. If I do? People read way too much into it and what my intentions are and what it means about me. In some cases, this type of misunderstanding has gotten me fired from jobs. 

And finally, one thing I began to notice in the summer of 1998 that sticks with me to this day is that when I think a situation is going downhill or that something is going on regarding me that I'm not aware of, I'm usually right. I may have had difficulty with social cues, but during the summer of 1998 I picked up on subtle cues that led me to correctly believe that people were scrutinizing me beyond the superficial (ie beyond "prove that you can work with kids"). I knew very clearly when they said one thing and all I was hearing was the tip of the iceberg. "We have some concerns." There was a time when I would have read that as, "We have some concerns." In fact, I think many people would. But ever since 1998, that word has been more loaded for me. "Concerns" means, "You are a problem and we are watching every move you make. And everything you do is subject to microscopic examination." Beyond this example, I can't articulate exactly what I mean. But I've seen it a number of times since then. I have had to learn to read more deeply into things than most people, because they don't have a history of social failure.

Despite everything, the summer of 1998 was overall a fun, memorable summer for me. But I still won't forget the frustration I felt in certain situations. And because of the lessons I took away from it that are still relevant, it does not seem as long ago as it should.




Saturday, March 19, 2011