Empathy

Another thing I'm curious about. Aspies are supposed to lack empathy? You seem to me unusually empathetic.

These were the words in a mildly-amusing-as-well-as-flattering private message from someone I am friendly with online. Yes, the pervasive myth that people with Asperger's Syndrome lack empathy is still making rounds. It reminds me of some kind of abstract Hydra: That is, instead of cutting off one head just to watch two grow in its place, I clear up the "Aspies don't have empathy myth" for one person just to to have to clear it up for two more people. It is a myth that has gone viral and just seems impossible to stop.

Do Aspies lack empathy? The problem is that the term "empathy" has two very different meanings. Here's dictionary.com's definition:

the psychological identification with or vicarious experiencing of the feelings, thoughts, or attitudes of another.

In other words, the definition can be interpreted in two ways: 1) Cognitively understanding that someone else is suffering (or joyful); whether or not the person cares about these feelings is a different question entirely. 2) The visceral reaction someone gets when seeing someone else suffering (or being joyful); that is, he's suffering (or joyful), so I'm suffering (or joyful) too, or  Unfortunately, when most people use the term "empathy", they use it in the second definition I am referencing: they believe that the Aspie knows that the other person is upset or joyful but simply does not care.

Reasons Why Many People Believe Aspies Lack Empathy

1. Difficulties with cognitive empathy are mistaken for lack of sympathy 

Yes, it is true that people with Asperger's Syndrome sometimes have problems with cognitive empathy, which is one thing that gives rise to the myth that they lack sympathy, more specifically, for another person. Sometimes Aspies do not realize that somebody else is upset. Or perhaps they do understand that the other person is upset but cannot quite understand why (depending where on the spectrum they are!) and the upset person thinks that they are self-centered and don't care how other people feel. Often, once the Aspie realizes that the person is upset, he or she cares just as much as any neurotypical person would. Conversely, sociopaths have a lot of cognitive empathy-- and they exploit others' emotions for their own selfish whims.

To give a very concrete example of this phenomenon in my own life, I need look no further than my horrible years in middle school. More times than I can count, I would approach a crying friend (and I use the term loosely, because they were fair-weather friends!) and ask her what was wrong. Her other friends would glare at me and ask, "Where have you been all week?" Because I missed subtle cues that something had been bothering a friend all week and did not realize it until she was doing something obvious-- crying-- the other girls thought that I didn't care, that I was only concerned about myself. Middle school is often the worst for girls with Asperger's because girls at that age tend to form relationships based on emotional intimacy, secrets, etc., rather than a shared interest, such as a favorite movie. The social dynamics become more intense and demanding. Boys that age are more likely to form friendships around shared interests-- it is for that reason (and more) that I wish I had tried to befriend boys at around that age. I had much more in common with them in terms of interests and styles of social interaction. Today I find that I generally get along better with men than with women (unless it's in a setting with like-minded individuals; then gender makes no difference).


2. We find it exhausting to be social butterflies

My very neurotypical mother is a high school teacher. She learns all of her students' names very quickly. She gets to know each kid individually and knows all their likes and dislikes. Years later, if she runs into one of her students again, she usually remembers him or her. I could not do what she does. Ever.

In my years working at summer camps, I bonded with a few kids over common interests. For example, if a camper wanted to learn to draw, we would bond over that because it was something concrete I could teach them. Or they could at least show me their drawings and I would be interested in seeing them. But I have difficulty pretending to be interested in a little girl's love of princesses, for example. I was not one of those counselors who knew everything about each camper, and it always took me forever to learn everyone's name. I'm also terrible with faces, which didn't help matters.

Fortunately, many of these kids usually liked me because they thought I was fun and funny. In a video I shot during my CIT year at Camp Negev, some 11-year-old kids are jumping up and down and shouting, "We love you, Julie!" But I don't remember the names of most of the kids that I've worked with. My style in terms of working with kids involves a very narrow, usually impersonal focus. Kids who wanted to bond with their counselors on a more personal level usually went to their other counselors. Unless, of course, the kid has psychological/neurological issues. Then they came to me. Kids with such issues usually liked me, probably because I understood them better and could give them better advice.


3. We react differently than neurotypicals to another's joy or distress 

If somebody I barely know at work, for example, tells me that their mother is in the hospital, I do not gush with emotion. I think it's unfortunate, but I am not overwhelmed with emotion at this news. I say, "Oh, jeez. I hope she gets better," and I forget about it ten seconds later. The expected reaction-- from both sexes, but I think women especially-- is to react viscerally, or at least pretend to. That is, people are expected to at least seem extremely upset even if they don't know this person. And sorry, I think a lot of the time it is just an act if the person doesn't know the other person well. It is a social ritual to stay in others' good graces. Same with the social ritual where everybody tells a new mother that her baby is "perfect". Sure, some people mean it, but I think a good portion of them are lying, just saying what is expected of them. What do I say? I say what I mean. I tell the new mother that she's going to be a great parent.

The thing is, I sometimes question my own capacity for empathy. When something bad happens to a friend, I try to console him or her. But I do not get emotionally involved with the friend's issues. I just try my best to help. Am I in the minority? Do most people get emotionally involved? Do they get a visceral reaction, feeling the ache of the friend's breakup (for example) as if it were happening to them? I don't. And also, do I try to anticipate the possibility of hurting another's feelings or annoying them in some way because I genuinely care about their feelings, or am I just trying to avoid trouble for myself? Or both? I really don't know. And why do most people try to avoid hurting or annoying others? Does avoiding trouble for themselves factor in as well? I really don't know either.

I am more likely to get visceral reactions when I see a suffering animal than when I see a suffering person. I once broke off two pieces of bagel to give to two pigeons. One larger, dominant pigeon ate his share and stole the other pigeon's piece. When the smaller pigeon tried to eat his own share, the larger pigeon bit him. This made me really upset. I wanted to kick that bullying pigeon away from the little pigeon. I tried to feed the small pigeon again, but the same thing happened. I tried scaring the larger pigeon away by stamping my feet. It didn't work. I threw a piece of bread a few feet away so the larger pigeon would have to chase it. Unfortunately, the smaller pigeon gave chase as well, so I was unable to feed the smaller pigeon separately. It made me so angry that this little pigeon was barely able to take a bite while this alpha male (or female? I don't know what sex it was) got his way because he was bigger and stronger.

As for suffering people, I rarely get visceral reactions where they're concerned-- unless it involves children, particularly children who are victims of bullying. And I suppose the pigeon incident ties in nicely to my visceral reactions for the children who are victims of bullying.


4. We find ourselves in very extreme circumstances that makes it look like we lack empathy

The obsessive crushes I've discussed in a few blog posts immediately come to mind. Most people are able to move on if they think their crush is avoiding them. I simply couldn't. But I knew that it was also wrong to be pushy towards these guys that I liked. It was this constant balancing act, a psychological war in my mind to try to figure out how to allow myself to interact with them without being too pushy. As for the times I waited for them outside of buildings at summer camp and on my Israel trip, that was the end result of the warfare in my mind. On my 1997 Israel trip I didn't say, "Hey, you know, I think I'll wait for Charlie outside a building. That's not weird at all. That sounds like a great idea." Of course I knew it was weird, but I was just experiencing intensely powerful emotions that I couldn't handle. As a friend from that trip put it: "You were so gone over Charlie that you didn't know what to do." But to the observer it looks like stalking and lack of respect on my part. Even the following summer back at camp, in 1998, it was not enough that I implemented strict, assiduous controls for myself to make sure I did not fall into those same behaviors again (also discussed in the above linked post). Why? Because in the last week  or two of camp I did fall into those behaviors. People commented that I seemed self-centered for hyperfocusing on these crushes, and they did not realize that it was not a conscious decision. It was that my brain was hijacked by neuroterrorists, as I call it, and I just didn't know what to do.

In other circumstances, such as trying to navigate middle school and having to watch my every move lest others start trash-talking me, people would ask me, "Why are you so focused on yourself? Why don't you ask other people how they're doing?" Because when your emotional survival depends on not becoming a target for bullying, the last thing on your mind is how other people are doing.


5. We don't always relate to what upsets others or makes them happy

I get a strong, visceral reaction from seeing victims of bullying suffer, from seeing children with psychological/neurological issues suffer, and from seeing animals suffer. I do not get a visceral reaction from hearing that my friend is having problems with her boyfriend. I've never been in a relationship and cannot relate directly to this. When I try to help, I tap into my issue of obsessive crushes to try find something relatable, but that is the best that I can do. I really cannot deal with a friend's relationship drama, and I don't want to (though I want them to feel better, of course), and they probably shouldn't come to me anyway because I have no good advice for them. But I suppose I am flattered that they do come to me.

In terms of joy, I really cannot relate to the joy a parent feels when having a baby. I can't even imagine feeling joyful about having a baby. And if I had any doubts about my declaration about not wanting kids, they were torpedoed when I began having recurring dreams about being pregnant and feeling horrified (in a couple dreams, I had the baby and thought, "What am I supposed to do with this?") The only time I really cared when someone I knew had a baby was when my cousin gave birth. But it wasn't this whole motherhood-is-an-amazing-and-rewarding-and-beautiful thing or a babies-are-so-precious thing. It was more of, "Oh, cool.  This person I grew up with is having a kid. It will be fun to watch him grow up."

The Irony

Now wait a second. Isn't it only natural that people tend to empathize with and therefore sympathize what they can relate to? Most people can relate to relationship drama and babies, and so most people are going to have the expected reactions. On the the other hand, most people can't relate to a lot of what I have been through. The girls in my middle school could not relate to my inability to see that another girl was upset, and so they could not empathize with how my confusion tormented me. Most people cannot relate to needing space from games of social football, so to speak. They cannot see why such a thing would be exhausting. No sympathy there, either. Most people cannot relate to being bullied at school. They think that to be bullied as bad as I was that you have to bring it upon yourself. No sympathy. Obsessive crushes? Same deal. Not thinking about others' needs because one's own emotional survival is in jeopardy? Forget it.

In other words, many neurotypicals lack empathy and sympathy for people with Asperger's because they cannot relate to what we go through. But because their neurotype is in the majority, our not relating to them looks like lack of empathy and sympathy whereas their inability to relate to us simply means our circumstances are too weird to be relatable.

And one more thing...

I'm going to, once again, plug a book by my favorite non-fiction writer, Richard Dawkins. The Selfish Gene. It is a great book with a misleading title, and the gist of the book is that natural selection works on the level of the gene rather than the organism. The genes are selfish (in a metaphorical sense), and this selfishness of genes gives rise to altruism. After all, family members share copies of these genes, and being altruistic towards them increases their chances of being passed on to another generation.

I once had a conversation with my mother about how people go through social rituals that are often phony: telling someone their baby (which they really think is ugly) is "perfect", insisting on paying for a meal even though they know damned well that the other person is going to cover them anyway, offering a Christmas guest leftovers to take home even though the host knows the guest probably doesn't want them... I told my mother that I think these rituals are really to stay in the good grace of others who might be able to reciprocate someday when the stakes are higher. My mother, missing the point that I was trying to offer an evolutionary explanation for these rituals, said, "No, it just makes them feel good." Okay, fair enough. But what does "feeling good" mean? There is a reward system in the brain that perpetuates behaviors that benefit oneself. If I remember correctly, oxytocin in the brain is the reward. So while the person might "feel good" from helping someone else, ultimately the individual (or their genes, if you want to get technical) are benefiting.

We are all out for ourselves in the end, and no amount of sympathy and empathy-- no matter how genuine-- changes that fact.

"Why do You Keep Dredging this Stuff Up?"

I had a really hard time making friends when I was in high school. My only friends were the ones I went to Camp Negev with, except for my then-best friend, Melanie. But that was until I met Jenna. I met Jenna (not her real name) in the fall of 1997, age 17, at one of Melanie's parties. Jenna and I hit it off immediately. We quickly got into a discussion about the absurdity of enforced gender roles. I recall that she said, "If a guy came in here in a pretty dress my only reaction would be to ask him where he got it." We exchanged contact information. We called each other and chatted on the then-new AOL Instant Messenger all the time.

I couldn't see Jenna very much, however. She lived in Northeast Philadelphia and I lived about an hour away in the suburbs. I didn't have my driver's license (I didn't feel ready to drive yet) and neither did Jenna (I forget why she didn't). The friends she saw on a regular basis were the ones she went to school with and who could come to her house and pick her up. I only got to see her at parties or the occasional sleepover. It didn't help that her father was a control freak, just like Melanie's mother, albeit in a different way. Melanie's mother was a control freak in that she wouldn't let Melanie get combat boots because they were "too masculine" (my mother got me a pair for my 18th birthday!), told her she couldn't refer to a crazy person as a "nutcase" as it was "too sexual" (oddly enough, "nutball" was okay), and that she wouldn't let her date black people. Yes, you heard me correctly. Melanie's mother more or less groomed Melanie into becoming just like her. Today she is living with her husband, kids, and her parents in the small Northeast Philadelphia house that she grew up in. She also cut me off and didn't invite me to the wedding, and I'm sure her mother had a lot, if not everything, to do with that.

Jenna's father was different. He was an alcoholic who had a drug-addicted girlfriend. Jenna's parents were divorced, and she had to live with her father because he was paying the tuition for her private school. Jenna's father rarely let Jenna go anywhere or do anything. No, this was not a case of a concerned father trying to quash his daughter's teenage rebellion. This wasn't even a case of a father trying to guide his daughter. In fact, he didn't guide her at all, and Jenna wasn't rebelling any more than any other teenager. This was, I think, a case of a "do as I say, not as I do" mentality. Not that Jenna was drinking or doing drugs. She absolutely wasn't. Like me, she was completely anti-drugs, especially since she saw what alcoholism and drug abuse could do to people.

In early 1998, on one of the rare instances that Jenna was able to spend time with me, she spent the night at my house. We were up until 3:00 in the morning talking intensely about what I now know is called evolutionary psychology. That is, I had come to the conclusion that everything we do, directly or indirectly, is based upon the instinct to reproduce-- even if the person doesn't consciously want children. And as a teenager experiencing an existential crisis, I naively thought that this was a new, revolutionary theory. Someone should have gently guided me towards books like The Selfish Gene by Richard Dawkins and, of course On the Origin of Species by Charles Darwin. I frantically paced my room, wildly gesticulating, and saying things like, "This is obviously why there are enforced gender roles! This is why bullying happens! It's all based on the ultimate goal-- to reproduce!" I began to realize that this was why I was paying the price for being different and having a hard time making friends. How about The Nurture Assumption by Judith Rich Harris and (the not-yet published) The Blank Slate by Steven Pinker?

I then confided in Jenna one of the things that led me to thinking about this sort of thing-- the  previous summer on a group trip to Israel in which I had an obsessive crush on Chuck, one of my counselors. I was embarrassed about how I'd handled it. I muttered something about how the instinct to reproduce had overtaken me even though I hadn't tried to be anything more than friends with Chuck. If I remember correctly, this was the first time I'd ever told anybody that story. For months I had kept it under wraps as I came to the realization that I'd handled this crush badly by following Chuck everywhere. It was a huge confession for me: "I, Julie, am obsessive when I get crushes on people."  I told Jenna this embarrassing story because I knew I could. I knew she'd listen. I knew she'd understand. And she did. In many ways, Jenna understood me better than many people I knew, including my friends from camp. And even though Melanie was my "official" best friend, I knew deep down Jenna and I had a lot more in common. Both of us had intellectual sides, both of us questioned reality. And Jenna affirmed me in a way that many other people didn't.

I lost touch with Jenna about ten years ago. We didn't have a fallout; life just happened. I think she was still living with her asshole father in Philadelphia the last time I talked to her, either in 2004 or 2005, and wasn't able to leave the city, let alone to go to New York, where I was then living. We did occasionally talk online at the time, however. On and off over the years since she stopped coming onto AOL Instant Messenger I tried to find her. I eventually came to the conclusion that if she was on Facebook it was under a pseudonym. So I did some heavy searching (and believe me, it wasn't easy, but I have my ways) and tracked down her snail-mail address. She lives on the other side of the country (I'm not going to mention where, to further protect her privacy). I sent her a postcard with my contact information on it. I had no doubt that if she got the postcard she would contact me. I didn't think for a second that she would pull the same elitist stunt that Melanie did.

And I was right. Within minutes of getting the postcard, Jenna friend requested me on Facebook and texted me on my cell phone. It turned out she was using a different name, but not as a pseudonym. She actually is in the process of getting a legal name change, partially because she doesn't want her father to find her. Jenna told me that she's seeing a therapist about her father, and has been diagnosed with Post-Traumatic Stress Disorder. It didn't surprise me in the slightest. What was also interesting is that Jenna had tried to find me a couple years ago on Facebook, but at the time I had my Facebook set so that nobody could look me up!

Reestablishing contact with Jenna brought back a few painful memories that involved my mother. This morning when my parents called me I mentioned that I had tracked down Jenna. Surprisingly, neither of them remembered who she was. I tried to remind them-- I'd met her through Melanie. That she was into bands like Pearl Jam. That she had wanted to play the guitar. Oh, and she had been interested in Wicca. And that's where the painful memory surfaced.

In the fall of 1998, after I'd known her for a year, Jenna was dabbling with Wicca. I had made the mistake of mentioning this to my mother, and while she was cooking breakfast. Mom slammed down the pan she was holding and said, "Well, then you'd better stay away from her!" Shocked and confused, I asked why. "Wicca is witchcraft!" Yes? And? Does anybody really believe in witches? I tried to deescalate the situation by joking, "Yeah, Jenna's going to cast a spell on me" and "Jenna's going to sell my soul to Satan." But that didn't work. Mom and I got into a huge fight. I remember trying harder than usual to stay calm but Mom kept cutting me off and telling me that I was wrong. Dad came in and diffused the situation. I think he was a little concerned, but I don't think he thought it was a huge deal like Mom did (and ultimately they didn't make me stay away from Jenna). Mom had also commented, "I hate to tell you, but Jenna lives on the fringe." And that really hurt. It really hurt because Mom had kept nagging me to find friends outside of camp, and when I did, she didn't approve of the one I had found, the one who really understood me. And I didn't think and still don't think Jenna lived "on the fringe". And actually, Dad had liked her. That meant a lot to me because Dad invariably saw right through the "friends" who ended up hurting and betraying me, long before they hurt and betrayed me. I recall that he had even commented that Melanie was a fair-weather friend (and it turns out he was right) but that Jenna was "genuine". I think Mom liked Jenna too, but for some reason she was wary of her from day one, and she often commented on it, not just during the Wicca episode. I also recall telling my parents about Jenna's father being a jerk and Mom kept thinking that Jenna's father was just trying to guide his daughter, quash teenage rebellion or something. She seemed skeptical when I told her about the kind of person her father was, including his alcoholism and his drug-addled girlfriend. It also hurt because when I had friends who didn't understand me and did hurt me, Mom often urged me to give them another chance.

I brought this up on the phone this morning. As I said, to my frustration, my parents don't remember Jenna, and Mom certainly doesn't remember the comments she made about her. But I mentioned the comments and Mom said, "You have to put yourself in my situation. You always seemed to be drawn to the bizarre and I was wary of everything." The word "bizarre" struck a chord with me, I guess because it sounds so loaded, so judgmental, so negative. Well, yeah, isn't it obvious that someone who's a little unusual would have more in common with someone else who's a little unusual? And Jenna was anything but bizarre. She had her head on straight, and she was very down to Earth. Dad said to me, "This was a long time ago. Why do you keep dredging these things up from so long ago and saying 'You did this to me' and 'You did that to me'?"

Why? Why do I bring these things up? Why indeed! Why is it that this past Christmas I brought up with my mother Melanie's little stunt where she cut me off and didn't invite me to the wedding and Sergio's little stunt where he ignored the package I sent him after telling me he looked forward to getting it? After all, both of these things happened in 2008, seven years ago. Why is it that I recently wrote a blog post about obsessive crushes that I had had almost two decades ago? And why did it take me about sixteen years to move past the way Mom continually screamed at me, at age 11, about the kinds of bizarre Addams Family cartoons I was drawing? And why did I bring up the way Mom talked about Jenna when I was a teenager?

Because I felt like I never got closure for these things. That's a large part of why I blog. It's the best way I can articulate and make people understand what it's like to be me. It's hard to get that across in a conversation. You have to write it out. You have to tell people and force them to read it. Mom didn't understand the obsessive crushes I went through because I didn't talk to her about them. "So much was kept from me", she said, after reading my latest blog post on the subject. I had kept these things from her because I knew they would freak her out. On the occasion when I did try to tell her, she just shut me down. It was a no-win situation. Now, here we are, almost two decades after this issue started, discussing the situation. It's long overdue. This is how I get closure. And I have to get closure. No matter how much time has passed since something emotionally painful has happened, I need to get closure in order to move past it. And I don't think this is nearly as uncommon as one would think-- sometimes people are in therapy trying to get closure on things that happened to them several decades ago. For me that closure involves confronting my parents with the way they inadvertently hurt me while thinking they were helping me. It involves informing them they were wrong about certain situations when I knew exactly what I was looking at. But sometimes I feel I can't even confront them about it as they just cut me off, saying, "We didn't know" or "We were trying to help" or "Kids don't come with instruction manuals." But the thing is, I really do need to talk about it. I wish they'd understand that.

And the other thing is that despite knowing logically that I was right about many of these things where my parents were wrong, I still find myself doubting my own perception, and a lot of it has to do with the intensity of the way Mom reacted to me over the years. When Dad was concerned about me, it was usually a discussion that ensued. With Mom, it was almost always a fight, with the implication being that I had no idea what I was talking about and she did because she was Older and Therefore Wiser and that I should just listen to her unquestioningly. Because of the intensity of the way Mom had reacted to me in the past, I found myself wondering what her reaction to my finding Jenna was going to be. And I found myself wondering if Mom had been right about Jenna while I had been wrong. Why, I wondered, did I still have the same perception of Jenna that I did seventeen-and-a-half years ago when we first met? Is this immaturity on my part? Naivety? My Asperger's blocking the correct view of reality?

Same deal with the other situations: I still feel the same way about how I handled my crush on Omri as I did seventeen years ago, that I handled it well until towards the end of the summer. I still don't think there was anything wrong with my sending a package to Sergio seven years ago. And I still think there was nothing wrong with me, twenty-three years ago, at age 11, drawing bizarre Addams Family cartoons as long as I didn't draw them in school (which I didn't). It's the idea that my perception on these issues hasn't changed much. Does that mean that I was right? Or does that mean I'm just some immature little twerp with Asperger's who "doesn't get it"? This is why I bring these things up. I admit that I do sound a bit confrontational and aggressive when I address these issues, and also sometimes like I'm making a joke out of it, but that's partially because finally being able to do so is awkward and new for me. It's awkward and new for me to finally be able to talk about these weighty issues with my parents after avoiding these subjects for decades, feeling that they were taboo on so many levels. It's been a few years since my parents really started "to get it" but a few years versus a few decades? Yes, it's still new. So yes, Dad, this is why I "keep dredging this stuff up". It's not fun for me, but I need some closure, and dredging these things up is how I'll get closure.

As for Jenna, I will say this: She and Melanie both came from controlling backgrounds, albeit controlling in different ways. The difference is that Jenna got out and Melanie didn't. What that tells me is that Jenna has a firmer sense of self than Melanie. And a neurotypical person having such a strong sense of self is a rare commodity these days. She should be commended for it.

Jenna is calling me in about an hour so we can finally talk on the phone for the first time in years. I still remember that long, intense conversation we had seventeen years ago until 3:00 AM. I have a feeling we're going to have a conversation of similar length and intensity. That's what good friends do.