When Dr. Jack Kevorkian, an intellectual hero of mine, died on June 3, 2011, I stared at the computer screen and muttered, "Oh, no." I felt my heart racing. And the next day on the way to Manhattan to see a friend, I briefly had tears in my eyes thinking about it. But why? I had never even met the man. Immediately, I found myself thinking, "What's wrong with me? Why should this upset me?" But of course I understand why. This was because reading about Dr. Jack Kevorkian I learned that he was a unique person, more than the Dr. Death stereotype. He was a painter, a musician, a filmmaker, a historian, a philosopher, a linguist, and an overall fiercely independent and brilliant man. I had never heard of anybody quite like him, and I had suspected that he had Asperger's Syndrome. My words here don't do him justice; one has to read his biography and watch the HBO documentary Kevorkian to really get it. I was upset because what it came down to was this: There will never be another.
Above you can see that I was justifying my feelings to myself. I felt I had to. It really shouldn't matter why I reacted the way I did to Dr. Kevorkian's death. It is the way I reacted, and I should have been able to own and embrace it. But my reflexive need-to-justify comes from years of unwitting conditioning from my parents. I thought that if they knew about my upset over Dr. Kevorkian's death, their reaction would be, "You have an unhealthy obsession with this." In fact, I had decided that if they did react that way I would tell them to get over it, that I'm an adult and this is who I am. Of course, now that they understand me better, they didn't bat an eye when I told them about my reaction to Dr. Kevorkian's death.
"As Nature Made Me: Part I" talked about the things that I did that my parents tried to fix. But what about the things that I thought? Yes, my thoughts were under scrutiny too. As you can see from the above anecdote, I was reflexively afraid of what amounts to being guilty of Thoughtcrime.
My parents' attempts to "fix" me didn't stop in telling me what to do and what not to do. My mother in particular pried into my thoughts with questions, comments, and judgments. I understand that she was trying to help me and just didn't know how. But it is still a frustrating memory that resonates to this day.
For example, when I was twelve there was a story in the news about conjoined twins that had been separated. I jokingly asked Dad, "What did they do? Take a knife and chop them down the middle?" Dad rolled his eyes and said, "Yes, Julie, exactly." Just as Dad was finishing his sentence, Mom shouted, "How could you find that funny? Why do you find these things funny?" Often, I was asked why I found a lot of different weird things funny. I had no answer and I couldn't think of a single one that would alleviate Mom's fears and concerns about me. It really hurt when Mom responded negatively to my gallows sense of humor, often by saying, "Get those odd thoughts out of your head!"
As a reaction to my absurdist sense of humor and oddball cartoon characters I created, Mom would often ask, "Why aren't you interested in 'nice' things, in 'beautiful' things?" or "Why can't you create a cartoon character like Belle from Beauty and the Beast?" To the first question, I had no answer. I wondered why there had to be one. And as for the second, SNORE.
There was also the Thoughtcrime about the movies and TV shows I got obsessed with. Mom would say: "Why do you talk about [insert movie here] all the time?" or "Why are you always thinking about that?" And this gem: "I don't want to talk about [insert set of characters here]. They are not people in my life!" I understand that it was probably tiresome for Mom to listen to me go on about the same thing over and over again, but I felt like I was being shut down, dismissed, and, most importantly, judged. I felt like I was committing Thoughtcrime. Today, it reminds me of how religions often chastise people for "impure thoughts".
Then there was the Thoughtcrime about thoughts I didn't have. I didn't have thoughts about the opposite sex at all until well into my teens. My parents thought I was gay and not ready to come out of the closet. Both of them (again, mostly Mom) grilled me about why I wasn't interested in dating, what thoughts I had about boys (sorry, none), and whether I had thoughts about girls (none there either). Telling them of my indifference was unsatisfactory. They just kept asking. In a way, it seemed that they didn't want an honest answer, but the "right" answer. To get them to leave me alone, I had to give them the answer that they wanted to hear. After all, any honest answer I gave was met with more questions.
Over the years I felt helpless to control my thoughts, my feelings, my obsessions, and my sense of humor. I often had intense internal monologues with myself, trying to justify as to why I was the way I was. I felt that I needed to justify these things, not just to my parents, but to myself. If I couldn't justify my thoughts, there was something fundamentally wrong with me.
In the days before Asperger's Syndrome was widely recognized, there was a huge coming-out process for those on the spectrum. At around age fourteen I came out to my father about the intensity of my obsessions with movies and TV shows (they manifested as "butterflies in my stomach"). I trusted him with this information because I knew it wouldn't freak him out. We often had talks about these sorts of things when he drove me to school in the morning. When I asked Dad, "Why do I get these physiological reactions?" of course he didn't know the answer, but he did often respond with, "That's you", or "Because you're creative and you get excited about these things."
Both of my parents are guilty to some extent of the accusations of "Thoughtcrime", but Dad was more laid back about my idiosyncrasies than Mom. Maybe mothers are just naturally grizzly bears, so to speak. Or maybe Dad's psychological profile, despite not having Asperger's Syndrome, is closer to mine than Mom's is. In any case, what a person with Asperger's needs is understanding about and acceptance for who they are. They don't need invasive questions, demands to stop thinking a certain way, and they certainly don't need to be fixed.
This is a blog where I will post about my experiences with being autistic. I invite others to do the same as well as ask me any questions or for advice. PLEASE ADD YOURSELF AS A FOLLOWER! :)
Saturday, November 22, 2014
As Nature Made Me: The Aspie Who Was Raised as a Neurotypical: Part II- Thoughtcrime
Labels:
absurdity,
Asperger's Syndrome,
autism,
Beauty and the Beast,
Belle,
coming out,
Dr. Jack Kevorkian,
gay,
obsessions,
thoughtcrime
As Nature Made Me: The Aspie Who Was Raised as a Neurotypical: Part I- Fixing Me
...Brenda [Reimer] was now living a life in which every instinct had to be denied, repressed, hidden: at dances, at parties, in the classroom, and on the street. "I was like a robot," he [Brenda, now David Reimer] says, describing the playacting that his day-to-day, moment-to-moment survival now entailed. "You're so careful to look normal, but you don't want to go overboard. You're saying to yourself, This looks like an appropriate time to smile. So you smile. This looks like an appropriate time to cross your legs. So you cross your legs. You're always thinking one step ahead, like in a chess game."
It was a chess game Brenda was losing.
This passage is from the book As Nature Made Him: The Boy Who Was Raised as a Girl by John Colapinto. This book tells the true story of David Reimer, a genetic male who was reassigned and raised as female named Brenda after a botched circumcision destroyed his penis. Dr. John Money, who championed the idea that gender identity is learned, not innate, supervised then-Brenda's sex reassignment and trumpeted this grand experiment as a success. It was, however, a terrific failure. Despite the fact that Brenda was reared as a girl from just under two years of age, "she" never felt like a girl. Even when "she" tried to fit in as a girl, "she" failed miserably. When Brenda learned that "she" was biologically male, at age fourteen, "she" immediately reverted to living as a boy.
The point of today's post is not gender identity specifically (but that will be addressed somewhat) but rather something in the above passage that resonates with me: "Brenda was living a life in which every instinct had to be repressed, denied, hidden..." This has been my life with Asperger's Syndrome, particularly growing up. By the time I was a teenager, I got the message that who I was was not okay. I tried so very hard to be socially appropriate, but each time I failed miserably. People told me that I joked around too much, so I tried to be serious. But then if I tried to be serious I would inevitably say something that "makes no sense" and end up making people uncomfortable. In the best case scenario, I would do neither and end up being a total stiff, doing my best to keep the real me hidden so I wouldn't put people off. But I put people off anyway: who wants to be around a stiff?
Every day in school, no matter what I did, I was shunned, taunted, and sometimes even physically attacked. Telling my parents made the situation worse. They tried to fix me. That is, they nitpicked every little thing about me because, hey, every little thing about me somehow rubbed people the wrong way. Often, my mother in particular told me what not to do:
"Don't talk about Alan Arkin movies. You can't expect the other girls to be interested in Alan Arkin." So? The girls can't expect me to be interested in makeup.
"Don't talk about cartoons. That's not what kids your age are interested in. It's juvenile! You're fourteen years old!" But that's what I'm passionately interested in. I'm going to be an animator when I grow up. I'm going to make the kind of weird, absurdist cartoons that you aren't thrilled that I enjoy watching.
"You can't go to school dressed like that. You look like a boy!" But I want to look like a boy. Well, more like a tomboy, because that's what I am. But girls are expected to outgrow that stage by age twelve, so I'd better keep my mouth shut about it and pretend I have no idea what Mom means by that. I'd better not tell anybody that I know this is never going to change.
Then came my mother's advice of what to do:
"Why can't you talk about what the other girls talk about?" Because the other girls talk about boys, clothes, and makeup. They flip through Teen magazines going, "And he's cute. And he's cute. And he's cute. And he's cute..." Snore.
"You need to learn how to make small talk. Talk about the teachers and ask what the other kids think of them." So on the first day of 8th grade I asked some other girls, "What do you think of Mr. Henry? It was so funny today when he went on about chewing gum in class and made those noises like he was cracking gum." But it felt so phony coming out of me, like I was reading from a script. And I think the other kids knew it.
"You need to learn to wear what's in style." What's in style are low-cut shirts and super-tight jeans. Wearing those things makes me feel very mortified and self-conscious. I like T-shirts and looser-fitting jeans.
From both of my parents came this gem:
"You have such a great figure and such beautiful hair. Girls would kill to look like you." I'm glad that I'm skinny, but not for reasons that you think. Skinnier people live longer. And it fits the tomboy image I have of myself. As for my hair, I hate it. It sticks out like Doc from Back to the Future. It takes me an hour to wash it and dry it. I want to cut it off and get a more tomboyish looking haircut. But I'm not allowed to because as a fourteen-year-old girl, I should love my hair and do my best to look like a model, because that is the normal psychology of a fourteen-year-old girl.
My parents tried their best to fix me, and when I resisted, they called me stubborn. They chalked up my resistance not to strength and self-awareness but to my being a teenager who thought she "knew everything". And it wasn't that I didn't try. I tried out Teen magazine in fifth grade. I couldn't get into the articles about the latest teen hunks and fashion tips. As I said, I tried the small talk about the teachers, but it was phony. And it was exhausting. In some ways this isn't terribly different than what poor David Reimer went through when he was growing up. How can you live your life when everything you say and do is subject to scrutiny and judgment?
Or how about what you think? Stay tuned for "Part II- Thoughtcrime".
Labels:
Alan Arkin,
as nature made him: the boy who was raised as a girl,
Asperger's Syndrome,
autism,
Back to the Future,
Brenda Reimer,
David Reimer,
Doc Brown,
gender identity,
teen magazine,
teenage girls
Thursday, November 20, 2014
I Want to Know
Like many people with Asperger's Syndrome, I'm not a huge fan of small talk but of ideas. I like to talk about ideas, debate ideas, and wax philosophical about ideas. No idea is too taboo. I just want to know.
I want to know if it is theoretically possible for someone to be able to perceive and see a four-dimensional object. Or, at least, what evolutionary changes would have to take place to make that possible.
I want to know if the universe is actually more than 13.7 billion years old.
I want to know how insects would adapt if a nuclear holocaust destroyed mammals, birds, and other species that couldn't handle radiation. I wonder if they would grow large.
I want to know if there ever will be a way to circumvent the light barrier in order to get to distant parts of the universe. Warp drive, anyone?
I want to know if it is possible to time travel to the past and what would happen if someone killed his grandfather before his grandfather procreated (It's called the "Grandfather Paradox").
I want to know what the last moments of life feel like without having to actually die so I could report the experience.
I want to know what would happen if someone were cloned and born 15 years after the original copy's birth and how different that person would be. How about 30 years? 45 years? 100 years?
I want to know what it's like to be a cat and to think that the world is out to destroy you. And what does my cat think is happening when I put him in his carrier?
I want to know if there is life on other planets and, if so, what their genetic code is.
I want to know how much more productive people would be if sex drive became obsolete.
I want to know if it's possible to genetically engineer certain harmful herd instincts out of people and, if so, would it be ethical to do so.
I want to know what exact genes and in-utero hormone levels are responsible for producing kids with Asperger's Syndrome as well as kids with more severe autism. What variables would a bioengineer have to twiddle with in order to affect the severity of the autism?
I want to know what exact genes are responsible for a person's hobbies. I want to know how those genes would manifest if that person were born in a different time and place. For example, how would genes that make someone interested in filmmaking have manifested before the invention of film?
I want to know what combination of genes and hormones is responsible for a person's precise location on the gender spectrum.
I want to know-- and experience-- how people who are completely deaf interpret the written language, since they have no point of reference for phonemes.
I want to know if my perception of red is the same as your perception of red. And yours. And his. And hers.
I want to know what the brain activity looks like of someone with Asperger's engaging in his/her hobby with a single-minded focus.
I want to know if it is theoretically possible for someone to be able to perceive and see a four-dimensional object. Or, at least, what evolutionary changes would have to take place to make that possible.
I want to know if the universe is actually more than 13.7 billion years old.
I want to know how insects would adapt if a nuclear holocaust destroyed mammals, birds, and other species that couldn't handle radiation. I wonder if they would grow large.
I want to know if there ever will be a way to circumvent the light barrier in order to get to distant parts of the universe. Warp drive, anyone?
I want to know if it is possible to time travel to the past and what would happen if someone killed his grandfather before his grandfather procreated (It's called the "Grandfather Paradox").
I want to know what the last moments of life feel like without having to actually die so I could report the experience.
I want to know what would happen if someone were cloned and born 15 years after the original copy's birth and how different that person would be. How about 30 years? 45 years? 100 years?
I want to know what it's like to be a cat and to think that the world is out to destroy you. And what does my cat think is happening when I put him in his carrier?
I want to know if there is life on other planets and, if so, what their genetic code is.
I want to know how much more productive people would be if sex drive became obsolete.
I want to know if it's possible to genetically engineer certain harmful herd instincts out of people and, if so, would it be ethical to do so.
I want to know what exact genes and in-utero hormone levels are responsible for producing kids with Asperger's Syndrome as well as kids with more severe autism. What variables would a bioengineer have to twiddle with in order to affect the severity of the autism?
I want to know what exact genes are responsible for a person's hobbies. I want to know how those genes would manifest if that person were born in a different time and place. For example, how would genes that make someone interested in filmmaking have manifested before the invention of film?
I want to know what combination of genes and hormones is responsible for a person's precise location on the gender spectrum.
I want to know-- and experience-- how people who are completely deaf interpret the written language, since they have no point of reference for phonemes.
I want to know if my perception of red is the same as your perception of red. And yours. And his. And hers.
I want to know what the brain activity looks like of someone with Asperger's engaging in his/her hobby with a single-minded focus.
Labels:
Asperger's Syndrome,
astrophysics,
autism,
cats,
genes,
genetic engineering,
hormones,
philosophy,
physics,
science,
sex,
taboo,
time paradoxes,
time travel
An Open Letter to an Ex-Friend
November 20th, 2014
I am not using your real name here, but if you are reading this, you know who you are.
I hope this letter finds you well. It has been 7 1/2 years since we've spoken last and 9 years since I last saw you. There is something I have long wanted to talk to you about. I would have done it a long time ago had you not stopped answering my emails and stopped taking my telephone calls. Wait a second. Actually, that is what I wanted to talk to you about.
We met in fall 1992 when we went to the same private school together. I was 12 and in 6th grade, and you were 13 and in 7th grade. We became fast friends because we were both odd, independent kids. I was the odd kid with undiagnosed Asperger's Syndrome, and you were just an odd, independent, and fun kid. Both of our mothers were teachers at the school. After school we hung out in the library while our mothers were at staff meetings. We drew comic strips that would have pissed off our mothers had they seen them, we had sword fights with my mother's Christmas decorations, and we did the Russian Kazatska around the playground just because we thought it was a funny dance.
Then my mother got a new job in the public schools and I couldn't come back to the private school for 7th grade. I'll never forget when I called you to break the news. You were crying hysterically on the phone. You said I was your best friend and you were going to miss me. But we kept in touch. We saw each other several times a year throughout my 7th, 8th, 9th, 10th, 11th, and 12th grade years. We were still best friends.
When I packed up and moved to New York City for college in the fall of 1999, you continued to live with your parents in Philadelphia and you commuted to a local university. But we still saw each other a few times a year, including on New Year's Eve, as was the tradition. We also continued our tradition of seeing the latest Disney animated movie together.
But then in spring 2002 you got a boyfriend. At age 22, he was your first boyfriend because you, like me, were a late bloomer. I was happy for you. I met the guy a few times and I thought he was great. Then your relationship with him became more serious and you talked to me less and less. I figured it was because I was living in New York and you were still in Philadelphia. Besides, you talked about marrying the guy and about how I was going to be at the wedding. The last time we spoke, in 2007, you said that you had set the wedding date for Saturday, August 16th, 2008, if I remember correctly. But as August 2008 approached, I noticed that I never received an invitation to the wedding. I called you and emailed you, not mentioning the wedding but to see how you were doing. I figured during the conversation I could broach the topic of the wedding. But you didn't answer my emails or take my calls.
Why didn't you invite me to the wedding? If you had had a limited budget and could only invite people in the Philadelphia metro area, people who you saw on a regular basis, I would have accepted that. What hurts is not that you didn't invite me to the wedding, but rather you didn't give me an explanation as to why you didn't invite me and, more importantly, why you have continued to shun me to this day. Every once in a while over the past six years I have sent you an email asking you how you are doing, and you haven't responded. Why? Why, after the 16 years that you had known me was I no longer good enough to be your friend?
Perhaps you outgrew me. Yes, you went from getting girlhood crushes to having a serious boyfriend-turned-husband while to this day I still awkwardly struggle with obsessive crushes (mercifully the last one I had was in 2008) like a teenager. You went from laughing at my stupid jokes about my dad being older than your dad (when the reality is that your dad is older than mine) to telling me to "give it a rest." We were both huge fans of Darkwing Duck. But perhaps being a fan of a children's cartoon seemed too juvenile to you as time passed. Hell, maybe I seemed too juvenile to you. Now that you were getting married, you had to "put away childish things", and that included me. Perhaps I was simply beneath you in so many ways.
Or maybe you were afraid that I would say or do something inappropriate and embarrassing at your wedding. So instead of talking to me about it, you did what most neurotypicals do: not confront it and ditch the person. Out of sight, out of mind. Not your problem anymore. You knew I have Asperger's Syndrome, but if you had brought a concern to my attention I would have taken it seriously. But perhaps Asperger's is just too frightening to you and you want nothing to do with it. Oh, and incidentally, I heard through the grapevine that your son is on the autism spectrum. If my Asperger's is a reason for shunning me, I hope the irony isn't lost on you. And I hope you never have to watch your son go through the agony that I've endured for almost seven years: wondering why his best friend for more than half of his life now wants nothing to do with him, having dreams about confronting said person to get answers and closure, and wondering what's wrong with him that would make the other person do this to him.
That is all.
Bittersweet Wishes,
Julie
Labels:
Asperger's Syndrome,
autism,
crushes,
friendship,
marriages,
shunning,
weddings
Wednesday, November 19, 2014
Thanksgiving and Social Norms
Wow, it's been almost two months since I last posted here. Sorry about that. Whew! There's been a lot going on that I'd rather not get into on a blog connected with my real name, but it does have a lot to do with why I've been silent here lately...
Anyway, with Thanksgiving coming up, I thought I'd write another Asperger's-persepective post about the neurotypical world and how that world manifests on Thanksgiving (or any other major holiday where extended family comes over). One thing I hate about Thanksgiving is how much food there is. Think about it-- we're supposed to be thankful for what we already have, and to celebrate that we overeat? I recently lost a lot of weight and have been trying to keep it under control, and Thanksgiving is one of the most threatening holidays in terms of that.
Why is there always so much food on Thanksgiving? Why are there usually no fewer than ten different desserts? It's ridiculous. Well, think about it. Even if the person who is hosting Thanksgiving wants to limit the number of desserts, how dare s/he tell the guests not to bring any? It sounds rude and ungrateful to the guests who are being oh, so nice and buying or baking something. On the other hand, guests are expected to bring food or else they're "bad guests" who are taking advantage of the host. Meanwhile, both parties might be thinking about how the overeating will impact their weight, or even that it's just so unnecessary to have so much food. It's just another case of people following social conventions in order to maintain bonds despite their own objections or concerns.
Is it really that rude, when hosting a Thanksgiving, to say, "Hey you know what? It's so silly to overeat on a holiday in which we give thanks for what we already have. It's not healthy to overeat, and a couple people are trying to watch their weight. Why don't we decide on one dessert that we all like and we'll have that?" Is someone who had planned to bring a 1200-calorie-per-slice chocolate cake (yes, we actually had that one year) because social norms dictate that s/he must bring something going to be offended? I highly doubt it. And I bet s/he will be secretly relieved that s/he doesn't have to spend money on it or time baking it. No, really. Why don't we try it? Why don't we buck social norms for a change and be a little more rational?
Anyway, with Thanksgiving coming up, I thought I'd write another Asperger's-persepective post about the neurotypical world and how that world manifests on Thanksgiving (or any other major holiday where extended family comes over). One thing I hate about Thanksgiving is how much food there is. Think about it-- we're supposed to be thankful for what we already have, and to celebrate that we overeat? I recently lost a lot of weight and have been trying to keep it under control, and Thanksgiving is one of the most threatening holidays in terms of that.
Why is there always so much food on Thanksgiving? Why are there usually no fewer than ten different desserts? It's ridiculous. Well, think about it. Even if the person who is hosting Thanksgiving wants to limit the number of desserts, how dare s/he tell the guests not to bring any? It sounds rude and ungrateful to the guests who are being oh, so nice and buying or baking something. On the other hand, guests are expected to bring food or else they're "bad guests" who are taking advantage of the host. Meanwhile, both parties might be thinking about how the overeating will impact their weight, or even that it's just so unnecessary to have so much food. It's just another case of people following social conventions in order to maintain bonds despite their own objections or concerns.
Is it really that rude, when hosting a Thanksgiving, to say, "Hey you know what? It's so silly to overeat on a holiday in which we give thanks for what we already have. It's not healthy to overeat, and a couple people are trying to watch their weight. Why don't we decide on one dessert that we all like and we'll have that?" Is someone who had planned to bring a 1200-calorie-per-slice chocolate cake (yes, we actually had that one year) because social norms dictate that s/he must bring something going to be offended? I highly doubt it. And I bet s/he will be secretly relieved that s/he doesn't have to spend money on it or time baking it. No, really. Why don't we try it? Why don't we buck social norms for a change and be a little more rational?
Labels:
Asperger's Syndrome,
autism,
food,
overeating,
social norms,
Thanksgiving,
weight loss
Wednesday, September 24, 2014
Know Thyself
Those of us with Asperger's Syndrome are no strangers to psychotherapy. Many of us have been seeing shrinks from an early age: way back when we were children in the '90s (or earlier) when nobody had even heard of Asperger's, up through the present day when Asperger's is well-known and understood. What's interesting is that today many kids with Asperger's don't need to see a shrink. Why? Because now that Asperger's is in the mainstream, psychologists recognize that there isn't necessarily anything psychologically wrong with kids who have AS. These kids get a little extra support in social skills and other areas where they have difficulty, these days often in school, but often do not need psychotherapy.
I am turning 34 next month and grew up in a world in which very few people had heard of Asperger's Syndrome. As you may have surmised, I have been in and out of therapy for years to a number of shrinks. Some of them have been great, some of them mediocre, and some just plain bad. I recently had to switch shrinks because my most recent one, Dr. Donalds (not her real name), was a nice person who meant well but who also chased a lot of red herrings, analyzing things about me and my life that had no deep meaning. Without going into detail, I've recently been having a problem with explosive anger whenever someone criticizes me. Why? Because for decades I've heard "You need to work on this", "You do that", "You make people uncomfortable", "You're perceived this way and that way", "You," "You", "You". It becomes infuriating after a while and makes me feel helpless and angry at myself. It's as if my brain short circuits when I hear one criticism too many. Instead of recognizing this issue for what it was-- anger and frustration-- Dr. Donalds tried to convince me that I was reacting to a repressed memory. Anybody who knows me knows that the idea of me having a repressed memory is hilarious. One of my friends even jokingly said that he doesn't want to end up in a courtroom with me because he knows I'll remember things that he doesn't. I told Dr. Donalds that this idea was absolutely ridiculous, but she got upset, feeling that I was calling her ridiculous.
Dr. Donalds also tried to diagnose me with post-traumatic stress disorder (PTSD) because of vivid recurring nightmares that I experience. She said that such nightmares are a symptom of PTSD. I am fully aware that one symptom isn't enough to diagnose somebody with anything, so I asked her about the other symptoms. One of them is a "fatalistic outlook on life". I said, "I don't have a fatalistic outlook on life!" She gave me this look that conveyed, "Um, seriously?" In fact, she gave me that look whenever I disagreed with something she said. She also tried to tell me I was clinically depressed. No, I'm happy most of the time, but I'm also frustrated. Again, challenging her assessment earned me the look.
This woman also treated my life like a mystery novel, trying to find a constellation of events in my background that converged in a singularity that is my life today. She even asked me to help her put together a family tree. I mentioned briefly that my father's side is mostly estranged these days (long story) but I never really knew them well to begin with. Dr. Donalds tried to tell me that this dynamic ultimately had some effect on me. I tried to tell her that these people had never had anything to do with me so their estrangement wasn't something I gave a second thought. She also tried to tell me that the occasions that I got separated from a group in school because of being spaced out had to have been traumatic. Why? Simply because I remember them. Never mind that I remember a lot of things, good and bad.
Oh, and Dr. Donalds also gave me that look when I told her I had Asperger's Syndrome. She didn't believe me, despite the fact that I was formally diagnosed back in New York City. And for the record, even if I hadn't been diagnosed, nothing could convince me I don't have Asperger's. I've done the research and I it explains everything about my life that was once a mystery.
I finally got tired of hearing that I had a repressed memory, tired of hearing that Dad's side of the family affected me, and tired of hearing that environment, not genetics, was 100% responsible for my issues, so I stopped seeing Dr. Donalds. I am now seeing a new therapist who seems much better. She understands me better and has worked with people with Asperger's Syndrome all across the spectrum. Most people don't know right away that I have AS, but she was able to see it quickly in subtle things such as my facial expressions and mannerisms.
Yes, therapists have degrees in psychology, but psychology is not an exact science. A therapist should help you with the problems you know you have and, perhaps, help you identify others. But Dr. Donalds made me question my sanity. If you think your therapist is seeing things that aren't there, or is overanalyzing aspects of your personality, then you are probably right. Just because a shrink has a lot of fancy wallpaper known as PhDs or MDs doesn't mean they have a trump card on understanding their patients. Besides, I think I know myself better than most people know themselves. I also suspect those of us with issues probably know ourselves better than those who have never had to go into therapy. Why? Because we have been forced to undergo constant sober reflection, for good and bad reasons.
As the old saying goes, know thyself.
I am turning 34 next month and grew up in a world in which very few people had heard of Asperger's Syndrome. As you may have surmised, I have been in and out of therapy for years to a number of shrinks. Some of them have been great, some of them mediocre, and some just plain bad. I recently had to switch shrinks because my most recent one, Dr. Donalds (not her real name), was a nice person who meant well but who also chased a lot of red herrings, analyzing things about me and my life that had no deep meaning. Without going into detail, I've recently been having a problem with explosive anger whenever someone criticizes me. Why? Because for decades I've heard "You need to work on this", "You do that", "You make people uncomfortable", "You're perceived this way and that way", "You," "You", "You". It becomes infuriating after a while and makes me feel helpless and angry at myself. It's as if my brain short circuits when I hear one criticism too many. Instead of recognizing this issue for what it was-- anger and frustration-- Dr. Donalds tried to convince me that I was reacting to a repressed memory. Anybody who knows me knows that the idea of me having a repressed memory is hilarious. One of my friends even jokingly said that he doesn't want to end up in a courtroom with me because he knows I'll remember things that he doesn't. I told Dr. Donalds that this idea was absolutely ridiculous, but she got upset, feeling that I was calling her ridiculous.
Dr. Donalds also tried to diagnose me with post-traumatic stress disorder (PTSD) because of vivid recurring nightmares that I experience. She said that such nightmares are a symptom of PTSD. I am fully aware that one symptom isn't enough to diagnose somebody with anything, so I asked her about the other symptoms. One of them is a "fatalistic outlook on life". I said, "I don't have a fatalistic outlook on life!" She gave me this look that conveyed, "Um, seriously?" In fact, she gave me that look whenever I disagreed with something she said. She also tried to tell me I was clinically depressed. No, I'm happy most of the time, but I'm also frustrated. Again, challenging her assessment earned me the look.
This woman also treated my life like a mystery novel, trying to find a constellation of events in my background that converged in a singularity that is my life today. She even asked me to help her put together a family tree. I mentioned briefly that my father's side is mostly estranged these days (long story) but I never really knew them well to begin with. Dr. Donalds tried to tell me that this dynamic ultimately had some effect on me. I tried to tell her that these people had never had anything to do with me so their estrangement wasn't something I gave a second thought. She also tried to tell me that the occasions that I got separated from a group in school because of being spaced out had to have been traumatic. Why? Simply because I remember them. Never mind that I remember a lot of things, good and bad.
Oh, and Dr. Donalds also gave me that look when I told her I had Asperger's Syndrome. She didn't believe me, despite the fact that I was formally diagnosed back in New York City. And for the record, even if I hadn't been diagnosed, nothing could convince me I don't have Asperger's. I've done the research and I it explains everything about my life that was once a mystery.
I finally got tired of hearing that I had a repressed memory, tired of hearing that Dad's side of the family affected me, and tired of hearing that environment, not genetics, was 100% responsible for my issues, so I stopped seeing Dr. Donalds. I am now seeing a new therapist who seems much better. She understands me better and has worked with people with Asperger's Syndrome all across the spectrum. Most people don't know right away that I have AS, but she was able to see it quickly in subtle things such as my facial expressions and mannerisms.
Yes, therapists have degrees in psychology, but psychology is not an exact science. A therapist should help you with the problems you know you have and, perhaps, help you identify others. But Dr. Donalds made me question my sanity. If you think your therapist is seeing things that aren't there, or is overanalyzing aspects of your personality, then you are probably right. Just because a shrink has a lot of fancy wallpaper known as PhDs or MDs doesn't mean they have a trump card on understanding their patients. Besides, I think I know myself better than most people know themselves. I also suspect those of us with issues probably know ourselves better than those who have never had to go into therapy. Why? Because we have been forced to undergo constant sober reflection, for good and bad reasons.
As the old saying goes, know thyself.
Labels:
Asperger's Syndrome,
autism,
depression,
post traumatic stress disorder,
psychiatrists,
psychologists,
psychotherapy,
PTSD,
red herrings,
repressed memories,
shrinks
Friday, September 5, 2014
People Just Don't Get It
Note: This is an angry rant, so there will be some swearing. If you're offended by that sort of thing, just read my other blog posts.
This post is an angry rant, because I am pretty fucking angry. It's hard enough to keep a happy, optimistic face for this blog. I want this blog to come across happy and optimistic because I want to give parents hope that everything is going to be okay. But I have to be honest. There is a lot in my life that isn't okay. Sometimes I get so frustrated and angry that I break down crying, thinking, "Where do I even begin to fix this?" And by "this" I mean being financially independent like my peers. I am turning 34 in October, and I still don't have a career or even a decent-sized apartment, let alone one that I can afford on my own. Everybody else my age I know-- and many ten years younger-- has a career, has a decent-sized apartment (or a house, if they're in the suburbs), and doesn't need help from their parents to make ends meet.
"Oh, but at least you're not starving in Africa. You don't know how lucky you are." You know what? You're right. I'm not starving in Africa. So fucking what? That doesn't make my frustration and anger any less real (It's a logical fallacy; I forget what it's called). I grew up relatively privileged, in a white, middle-class household with educated parents. I lived in a relatively affluent suburb in Pennsylvania. I went to college and grad school. Given my background, I should have a career now and be financially independent. But if you have Asperger's Syndrome, growing up privileged doesn't mean shit unless you are born into wealth. I still have to get a career. I have a Master's Degree and am making $12.75 an hour at a temporary work-at-home job. What is my job? Transcribing. Mind-numbing transcribing that any idiot with a GED can do. And because I lost my last two jobs, each after a paltry four months (in both cases they said I was too awkward and made our clientele uncomfortable), to stay in Boston I had to give up my spacious, one-bedroom apartment and downgrade to a studio. It's $1200 a month, and the only way to get any lower in Boston is to live in a basement apartment not much bigger than a walk-in closet with no windows. Even then, the lowest the rent goes for something like that is $1000. The other option is to get roommates, which can bring each person's rent as low as $700-$800 per month. But all my roommate situations in the past have been disasters. My parents even said they would rather help me pay for my own little corner of the universe than take the chance that I would get into some ridiculous conflict with roommates and then have to move out (moving, of course, isn't free).
I know that I'm more intelligent than my employment history and living circumstances reflect but that makes no fucking difference unless you have pristine social skills. And research has shown that the decision to hire someone an any job is almost entirely based on how well they think she'll "fit in" with her coworkers, much more than if she has the talent to do the job. I'm not the kind of person who fits in. It's not that I haven't tried, it's that I can't. Making friends is not an issue for me because I live in a diverse city and can easily find social misfits/intellectual nerds who'd rather talk about psychologically intense topics than how someone's third cousin once removed is doing. But most people would rather talk about the latter, and that's what they expect you to do on the job, even if it is not related to the job description. People know when I'm faking it. I can only feign interest in somebody's third cousin once removed before the holes in my mask start to form. I then have to retreat to my little corner of the universe and do my work. But no. Most high paying jobs expect you to work as a team. I work in groups with about the same ease and naturalness as an asexual person behaves like John F. Kennedy.
"Oh, well have you tried this? Or that? Or the other thing?" Yes, of course I have. I've finished my undergrad 11 years ago. You think I haven't fucking tried? Of course I have, and I've run into one brick wall after another.
Oh, and people have told me over and over that I come off as harsh, angry, argumentative, and even cold.
"You know, the way you're talking to me when you're upset, you're real intense and argumentative and harsh. Maybe that's what's gotten you in trouble at work." No! That's not what has happened! I'm letting my guard down with you. At work I try to hide these emotions. People have told me I'm too "intense" or "harsh" or "argumentative" even when I'm happy or joking around. It's like all I have to do to fucking offend someone is open my fucking mouth, even if I just ask how they are! So you know what the other option is, to make sure I don't offend anyone or make anyone uncomfortable? Not talk. And then I become a fucking stiff and they still feel uncomfortable, but for different reasons.
"Well, you know, you do tell inappropriate and sometimes shocking jokes. Do you do that at work?"
Yes, I have a raunchy, macabre, and downright absurd sense of humor. I also love saying things for shock value just to see how people react. But you know, I'm not Rainman. I tell the "shock value" jokes you're talking about to friends or on online social networks under an anonymous name, not in a professional setting. My friends laugh, and people online click "like" or write "Hahaha!" I learned years and years ago that there's a time and a place for these things, and work sure as hell isn't it. People at work have called me "inappropriate" for reasons that I'm not sure of but that have nothing to do with the jokes I tell outside of work.
"Well you're very interested in the work of Richard Dawkins and Dr. Kevorkian. You bring those guys up all the time. Are you talking about them at work? You can't do that, you know. They're too controversial."
Yes, I fucking know that I can't bring up these guys or their work in a job setting-- especially not Dr. Kevorkian-- because people at work represent a diverse range of sociopolitical and religious beliefs and I don't know these people well enough to have such discussions with them. I don't feel deprived if I can't bring up Richard Dawkins or Dr. Kevorkian, either. I am at work to do work. Of course, the funny thing is I've heard radically conservative people at work bring up their shocking views without getting in trouble.
"Maybe you are talking about Richard Dawkins and Dr. Kevorkian and you don't realize it?"
I think I'm fucking aware of what topics I'm bringing up. Don't patronize me.
When people-- friends, relatives, and even my shrink-- say these things to me, they clearly don't get it. I know they're trying to help me, reaching for the lowest hanging fruit, so to speak. But after a while it's like I'm hearing a mantra, a list of phrases from a pull-string doll. And yes, when I get frustrated enough, I do explode and curse a blue streak (it upsets them, but they know not to take it personally and I do apologize later). But they don't get it. They really don't. Why? They're coming from a neurotypical perspective, that the only way that I as a white, privileged middle-class American could be in this situation is if there was something I haven't tried. The fact that even my shrink gives these obvious suggestions is very telling. Hell, even my parents only started to "get it" in the past five years or so!
This is my life as an adult with Asperger's. Don't get me wrong: I am happy most of the time. But then sometimes (like last night when I was talking to my shrink) old wounds get reopened. No, they get reopened, have salt poured in them, and are pissed in. And I get angry and explosive and cry. Sometimes I just can't take it. Working out usually helps a little, but recently I injured myself while running and I can't do much of anything in the way of vigorous exercise until I heal.
I'm angry. I'm hurting. I'm cynical. I'm frustrated. I have Asperger's Syndrome.
This post is an angry rant, because I am pretty fucking angry. It's hard enough to keep a happy, optimistic face for this blog. I want this blog to come across happy and optimistic because I want to give parents hope that everything is going to be okay. But I have to be honest. There is a lot in my life that isn't okay. Sometimes I get so frustrated and angry that I break down crying, thinking, "Where do I even begin to fix this?" And by "this" I mean being financially independent like my peers. I am turning 34 in October, and I still don't have a career or even a decent-sized apartment, let alone one that I can afford on my own. Everybody else my age I know-- and many ten years younger-- has a career, has a decent-sized apartment (or a house, if they're in the suburbs), and doesn't need help from their parents to make ends meet.
"Oh, but at least you're not starving in Africa. You don't know how lucky you are." You know what? You're right. I'm not starving in Africa. So fucking what? That doesn't make my frustration and anger any less real (It's a logical fallacy; I forget what it's called). I grew up relatively privileged, in a white, middle-class household with educated parents. I lived in a relatively affluent suburb in Pennsylvania. I went to college and grad school. Given my background, I should have a career now and be financially independent. But if you have Asperger's Syndrome, growing up privileged doesn't mean shit unless you are born into wealth. I still have to get a career. I have a Master's Degree and am making $12.75 an hour at a temporary work-at-home job. What is my job? Transcribing. Mind-numbing transcribing that any idiot with a GED can do. And because I lost my last two jobs, each after a paltry four months (in both cases they said I was too awkward and made our clientele uncomfortable), to stay in Boston I had to give up my spacious, one-bedroom apartment and downgrade to a studio. It's $1200 a month, and the only way to get any lower in Boston is to live in a basement apartment not much bigger than a walk-in closet with no windows. Even then, the lowest the rent goes for something like that is $1000. The other option is to get roommates, which can bring each person's rent as low as $700-$800 per month. But all my roommate situations in the past have been disasters. My parents even said they would rather help me pay for my own little corner of the universe than take the chance that I would get into some ridiculous conflict with roommates and then have to move out (moving, of course, isn't free).
I know that I'm more intelligent than my employment history and living circumstances reflect but that makes no fucking difference unless you have pristine social skills. And research has shown that the decision to hire someone an any job is almost entirely based on how well they think she'll "fit in" with her coworkers, much more than if she has the talent to do the job. I'm not the kind of person who fits in. It's not that I haven't tried, it's that I can't. Making friends is not an issue for me because I live in a diverse city and can easily find social misfits/intellectual nerds who'd rather talk about psychologically intense topics than how someone's third cousin once removed is doing. But most people would rather talk about the latter, and that's what they expect you to do on the job, even if it is not related to the job description. People know when I'm faking it. I can only feign interest in somebody's third cousin once removed before the holes in my mask start to form. I then have to retreat to my little corner of the universe and do my work. But no. Most high paying jobs expect you to work as a team. I work in groups with about the same ease and naturalness as an asexual person behaves like John F. Kennedy.
"Oh, well have you tried this? Or that? Or the other thing?" Yes, of course I have. I've finished my undergrad 11 years ago. You think I haven't fucking tried? Of course I have, and I've run into one brick wall after another.
Oh, and people have told me over and over that I come off as harsh, angry, argumentative, and even cold.
"You know, the way you're talking to me when you're upset, you're real intense and argumentative and harsh. Maybe that's what's gotten you in trouble at work." No! That's not what has happened! I'm letting my guard down with you. At work I try to hide these emotions. People have told me I'm too "intense" or "harsh" or "argumentative" even when I'm happy or joking around. It's like all I have to do to fucking offend someone is open my fucking mouth, even if I just ask how they are! So you know what the other option is, to make sure I don't offend anyone or make anyone uncomfortable? Not talk. And then I become a fucking stiff and they still feel uncomfortable, but for different reasons.
"Well, you know, you do tell inappropriate and sometimes shocking jokes. Do you do that at work?"
Yes, I have a raunchy, macabre, and downright absurd sense of humor. I also love saying things for shock value just to see how people react. But you know, I'm not Rainman. I tell the "shock value" jokes you're talking about to friends or on online social networks under an anonymous name, not in a professional setting. My friends laugh, and people online click "like" or write "Hahaha!" I learned years and years ago that there's a time and a place for these things, and work sure as hell isn't it. People at work have called me "inappropriate" for reasons that I'm not sure of but that have nothing to do with the jokes I tell outside of work.
"Well you're very interested in the work of Richard Dawkins and Dr. Kevorkian. You bring those guys up all the time. Are you talking about them at work? You can't do that, you know. They're too controversial."
Yes, I fucking know that I can't bring up these guys or their work in a job setting-- especially not Dr. Kevorkian-- because people at work represent a diverse range of sociopolitical and religious beliefs and I don't know these people well enough to have such discussions with them. I don't feel deprived if I can't bring up Richard Dawkins or Dr. Kevorkian, either. I am at work to do work. Of course, the funny thing is I've heard radically conservative people at work bring up their shocking views without getting in trouble.
"Maybe you are talking about Richard Dawkins and Dr. Kevorkian and you don't realize it?"
I think I'm fucking aware of what topics I'm bringing up. Don't patronize me.
When people-- friends, relatives, and even my shrink-- say these things to me, they clearly don't get it. I know they're trying to help me, reaching for the lowest hanging fruit, so to speak. But after a while it's like I'm hearing a mantra, a list of phrases from a pull-string doll. And yes, when I get frustrated enough, I do explode and curse a blue streak (it upsets them, but they know not to take it personally and I do apologize later). But they don't get it. They really don't. Why? They're coming from a neurotypical perspective, that the only way that I as a white, privileged middle-class American could be in this situation is if there was something I haven't tried. The fact that even my shrink gives these obvious suggestions is very telling. Hell, even my parents only started to "get it" in the past five years or so!
This is my life as an adult with Asperger's. Don't get me wrong: I am happy most of the time. But then sometimes (like last night when I was talking to my shrink) old wounds get reopened. No, they get reopened, have salt poured in them, and are pissed in. And I get angry and explosive and cry. Sometimes I just can't take it. Working out usually helps a little, but recently I injured myself while running and I can't do much of anything in the way of vigorous exercise until I heal.
I'm angry. I'm hurting. I'm cynical. I'm frustrated. I have Asperger's Syndrome.
Labels:
advice,
Asperger's Syndrome,
autism,
autistic,
Dr. Jack Kevorkian,
employment,
John F. Kennedy,
neurotypical,
psychologists,
Richard Dawkins,
social graces,
social mistakes,
social rituals,
social skills,
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